Massachusetts General Hospital, Department of Radiation Oncology, Boston, MA 02114-2606, USA.
J Oncol Pract. 2013 May;9(3):e90-5. doi: 10.1200/JOP.2013.001003.
The National Radiation Oncology Registry (NROR), sponsored by the Radiation Oncology Institute and the American Society for Radiation Oncology, is designed to collect standardized information on cancer care delivery among patients treated with radiotherapy in the United States and will focus on patients with prostate cancer. Stakeholders were engaged through a forum that emphasized the need for patient-centered outcomes, minimal data burden, and maximal connectivity to existing registries and databases. An electronic infrastructure is under development to provide connectivity across radiation oncology and hospital information systems. The NROR Gateway features automatic abstraction as well as aggregation of treatment and outcome data. The prostate cancer data dictionary provides standardized elements in four domains: facility, physician, patient, and treatment. The pilot phase will consist of clinical centers chosen to provide a representative mix of radiation treatment modalities, facility types, population-based settings, and regional locations. The initial set of radiation practice metrics includes physician board certification and maintenance, ordering of staging scans, active surveillance discussion, dose prescriptions for low-risk/high-risk disease, radiation fields for low-risk/high-risk disease, image-guided radiation therapy use, androgen deprivation therapy use, post-brachytherapy implant computed tomography dosimetry, collection of toxicity assessments, and longitudinal patient follow-up. The NROR pilot study will provide the framework for expansion to a nationwide electronic registry for radiation oncology.
美国放射肿瘤学会和美国放射肿瘤学会赞助的国家放射肿瘤学登记处（NROR）旨在收集美国接受放射治疗的癌症患者护理提供的标准化信息，重点关注前列腺癌患者。利益相关者通过一个论坛参与，该论坛强调需要以患者为中心的结果、最小的数据负担以及与现有登记处和数据库的最大连接。正在开发一个电子基础设施，以提供放射肿瘤学和医院信息系统之间的连接。NROR 网关具有自动提取以及治疗和结果数据的聚合功能。前列腺癌数据字典在四个领域提供标准化元素：设施、医生、患者和治疗。试点阶段将包括选择的临床中心，以提供放射治疗方式、设施类型、基于人群的环境和区域位置的代表性组合。初始放射实践指标集包括医生委员会认证和维护、分期扫描的订购、主动监测讨论、低危/高危疾病的剂量处方、低危/高危疾病的放射野、图像引导放射治疗的使用、雄激素剥夺治疗的使用、近距离治疗后植入物计算机断层扫描剂量学、毒性评估的收集以及纵向患者随访。NROR 试点研究将为放射肿瘤学的全国性电子登记处的扩展提供框架。
