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建立国家放射肿瘤学登记处:从橡子到橡树。

Developing a national radiation oncology registry: From acorns to oaks.

机构信息

Department of Radiation Oncology, University of Florida College of Medicine, Gainesville, Florida.

Department of Radiation Oncology, Massachusetts General Hospital, Boston, Massachusetts.

出版信息

Pract Radiat Oncol. 2012 Jan-Mar;2(1):10-7. doi: 10.1016/j.prro.2011.06.002. Epub 2011 Jul 14.

DOI:10.1016/j.prro.2011.06.002
PMID:24674031
Abstract

PURPOSE

The National Radiation Oncology Registry (NROR) is a collaborative initiative of the Radiation Oncology Institute and the American Society of Radiation Oncology, with input and guidance from other major stakeholders in oncology. The overarching mission of the NROR is to improve the care of cancer patients by capturing reliable information on treatment delivery and health outcomes.

METHODS

The NROR will collect patient-specific radiotherapy data electronically to allow for rapid comparison of the many competing treatment modalities and account for effectiveness, outcome, utilization, quality, safety, and cost. It will provide benchmark data and quality improvement tools for individual practitioners. The NROR steering committee has determined that prostate cancer provides an appropriate model to test the concept and the data capturing software in a limited number of sites. The NROR pilot project will begin with this disease-gathering treatment and outcomes data from a limited number of treatment sites across the range of practice; once feasibility is proven, it will scale up to more sites and diseases.

RESULTS

When the NROR is fully implemented, all radiotherapy facilities, along with their radiation oncologists, will be solicited to participate in it. With the broader participation of the radiation oncology community, NROR has the potential to serve as a resource for determining national patterns of care, gaps in treatment quality, comparative effectiveness, and hypothesis generation to identify new linkages between therapeutic processes and outcomes.

CONCLUSIONS

The NROR will benefit radiation oncologists and other care providers, payors, vendors, policy-makers, and, most importantly, cancer patients by capturing reliable information on population-based radiation treatment delivery.

摘要

目的

国家放射肿瘤学登记处(NROR)是放射肿瘤学研究所和美国放射肿瘤学会的合作倡议,得到了肿瘤学领域其他主要利益相关者的投入和指导。NROR 的总体使命是通过收集有关治疗提供和健康结果的可靠信息来改善癌症患者的护理。

方法

NROR 将通过电子方式收集患者特定的放射治疗数据,以允许对许多竞争的治疗方式进行快速比较,并考虑有效性、结果、利用率、质量、安全性和成本。它将为个体从业者提供基准数据和质量改进工具。NROR 指导委员会已确定前列腺癌为合适的模型,可在有限数量的站点中测试该概念和数据捕获软件。NROR 试点项目将从该疾病开始,在实践范围内的有限数量的治疗站点中收集治疗和结果数据;一旦证明可行性,将扩大到更多的站点和疾病。

结果

当 NROR 全面实施时,将邀请所有放射治疗设施及其放射肿瘤学家参与其中。随着放射肿瘤学界更广泛的参与,NROR 有可能成为确定国家护理模式、治疗质量差距、比较有效性和假设生成的资源,以确定治疗过程和结果之间的新联系。

结论

NROR 将通过收集基于人群的放射治疗提供的可靠信息,使放射肿瘤学家和其他护理提供者、付款人、供应商、政策制定者,以及最重要的癌症患者受益。

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Regarding: Rosenthal DI, Glatstein E. "We've Got a Treatment, but What's the Disease?" The Oncologist 1996;1.关于:罗森塔尔·迪、格拉茨坦·埃。《我们有了一种治疗方法,但疾病是什么?》,《肿瘤学家》1996年;第1期。
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