异基因造血细胞移植候选者及其代理人的预先护理计划过程：自我效能感、控制点和焦虑水平。
The process of advance care planning in HCT candidates and proxies: self-efficacy, locus of control, and anxiety levels.
作者信息
Duckworth Katharine E, Forti Allison M, Russell Gregory B, Naik Seema, Hurd David, McQuellon Richard P
机构信息
Department of Internal Medicine, Section on Hematology and Oncology, Wake Forest Baptist Medical Center, Winston-Salem, NC, USA
Wake Forest University, Winston-Salem, NC, USA.
出版信息
Am J Hosp Palliat Care. 2014 Nov;31(7):710-6. doi: 10.1177/1049909113499815. Epub 2013 Aug 13.
The purpose of this study was to examine the relationship between hematopoietic cell transplant candidate and proxy advance care planning (ACP) behavior and attitudes. A total of 49 candidates and 44 proxies completed the Advance Directive Attitudes Survey, Multidimensional Health Locus of Control Scale, Family Decision Making Self-Efficacy Scale, and the State-Trait Anxiety Inventory. In all, 45% of candidates reported completing an advance directive (AD), while only 26% had ADs on file; 80% of candidates discussed ACP wishes with their loved ones and 15% discussed ACP wishes with their medical team. The AD completers were significantly (1) older, (2) more positive about ADs, and (3) were less likely to believe that health events happen by chance. Discrepancies between reported ACP behavior and communication with health care practitioners have implications for end-of-life care.
本研究的目的是探讨造血细胞移植候选者与其代理人的预先医疗计划（ACP）行为及态度之间的关系。共有49名候选者和44名代理人完成了《预先指令态度调查》《多维健康控制点量表》《家庭决策自我效能量表》以及《状态-特质焦虑量表》。总体而言，45%的候选者报告称已完成预先指令（AD），但仅有26%的预先指令已存档；80%的候选者与他们的亲人讨论了ACP愿望，15%的候选者与他们的医疗团队讨论了ACP愿望。完成AD的人显著具有以下特点：（1）年龄更大；（2）对AD的态度更积极；（3）不太可能相信健康事件是偶然发生的。报告的ACP行为与与医疗从业者的沟通之间的差异对临终护理具有影响。
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