Joe Wright is with the Division of General Medicine and Primary Care, Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA.
Am J Public Health. 2013 Oct;103(10):1788-98. doi: 10.2105/AJPH.2013.301381. Epub 2013 Aug 15.
The invention of AIDS activism came soon after the AIDS epidemic emerged in gay communities in the United States in the early 1980s. AIDS activism by and for people with AIDS, distinct from gay activism responding to the threat of AIDS on the behalf of the whole community, started as a way of resisting the phenomenon of social death. Social death, in which people are considered "as good as dead" and denied roles in community life, posed a unique threat to people with AIDS. An organized political response to AIDS began among gay men with AIDS in San Francisco, California, and New York, New York, formalized in a foundational document later called the Denver Principles. The ideas and language of these first people with AIDS influenced later AIDS activism movements. They also help to illustrate the importance of considering an epidemic from the point of view of people with the disease.
艾滋病活动家的出现紧随艾滋病在美国同性恋群体中爆发之后,大约在 20 世纪 80 年代初。艾滋病活动家代表艾滋病患者开展活动,与同性恋群体为整个社区应对艾滋病威胁的活动不同,它最初是一种抵制社会死亡现象的方式。社会死亡是指人们被认为“已经死亡”,被剥夺了参与社区生活的角色,这对艾滋病患者构成了独特的威胁。加利福尼亚州旧金山和纽约州纽约的艾滋病患者中的男同性恋者对艾滋病做出了有组织的政治回应,这一回应在后来被称为《丹佛原则》的基础性文件中得到了正式确认。第一批艾滋病患者的想法和语言影响了后来的艾滋病活动家运动。这些想法和语言也有助于说明从疾病患者的角度考虑疫情的重要性。