von Vogelsang Ann-Christin, Wengström Yvonne, Svensson Mikael, Forsberg Christina
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden; Red Cross University College, Stockholm, Sweden.
J Clin Nurs. 2014 May;23(9-10):1263-73. doi: 10.1111/jocn.12317. Epub 2013 Aug 20.
To describe changes and transitions in everyday life in the first two years following an intracranial aneurysm rupture.
An intracranial aneurysm rupture causes a haemorrhagic stroke, and the physical and mental consequences of this condition are numerous and complex. In Sweden, some, but not all, patients receive rehabilitation for this condition. Patients with this type of stroke are not included in the national stroke registry; thus, information on the recovery period for these particular patients is lacking.
A longitudinal mixed methods study design was used.
The sample was consecutive and consisted of 88 patients (84·6% of 104 eligible), acutely admitted to a neurosurgical clinic in Stockholm for intracranial aneurysm rupture. Data were collected through a postal study-specific questionnaire at 6 months, 1 year and 2 years postaneurysm rupture. Intramethod mixing was used in the data collection, and quantitative and qualitative data were analysed parallel with statistical and qualitative content analysis.
A majority of participants perceived changes in their everyday lives during the first two years following aneurysm rupture, and the changes were ongoing with little differences reported between 6 months and 2 years after the onset. Internal changes, or transitions, were revealed within changes in personality, changed social roles and relationships and changed abilities and behaviour.
Recovering from an intracranial aneurysm rupture involves a period of intense changes and transitions, a vulnerable period for many people that may be made easier to manage by the intervention of nurses.
Patients experiencing transitions in the recovery period after intracranial aneurysm rupture may benefit from nursing interventions that support them through the transitional process. Nurse-led follow-up care by a specialist nurse from the neurosurgical clinic may be a possible way to provide support.
描述颅内动脉瘤破裂后头两年日常生活中的变化与转变。
颅内动脉瘤破裂会引发出血性中风，这种病症对身心造成的后果众多且复杂。在瑞典，部分但并非所有此类患者会接受针对该病症的康复治疗。这类中风患者未被纳入国家中风登记系统；因此，缺乏关于这些特定患者恢复期的信息。
采用纵向混合方法研究设计。
样本为连续选取的88例患者（占104例符合条件患者的84.6%），他们因颅内动脉瘤破裂而紧急入住斯德哥尔摩的一家神经外科诊所。在动脉瘤破裂后的6个月、1年和2年，通过邮寄特定研究问卷收集数据。数据收集采用方法内混合，定量和定性数据通过统计分析和定性内容分析并行进行分析。
大多数参与者在动脉瘤破裂后的头两年里察觉到日常生活发生了变化，且这些变化持续存在，发病后6个月至2年之间报告的差异不大。在个性变化、社会角色和关系改变以及能力和行为改变中揭示了内在变化或转变。
从颅内动脉瘤破裂中恢复涉及一段剧烈变化和转变的时期，对许多人来说这是一个脆弱时期，护士的干预可能会使其更易于应对。
颅内动脉瘤破裂后恢复期经历转变的患者可能受益于在过渡过程中支持他们的护理干预。由神经外科诊所的专科护士主导的随访护理可能是提供支持的一种可行方式。
