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父母对其子女自闭症谱系障碍早期诊断的反应:一项探索性研究。

Parental reaction to early diagnosis of their children's autism spectrum disorder: an exploratory study.

作者信息

Poslawsky Irina E, Naber Fabiënne B A, Van Daalen Emma, Van Engeland Herman

出版信息

Child Psychiatry Hum Dev. 2014 Jun;45(3):294-305. doi: 10.1007/s10578-013-0400-z.

Abstract

This study explores parental reactions subsequent to receiving their child’s autism spectrum disorder (ASD)-diagnosis. Seventy seven parents of recently diagnosed children participated in the Reaction to Diagnosis Interview. Within this group, associations between parental reaction to diagnosis, parental and child characteristics and prediagnostic circumstances were analysed. In a sub-sample, the stability of reaction to diagnosis was examined. The majority of parents were classified as ‘resolved’ regarding their child’s diagnosis. Conversely, parents of children with more severe ASD symptoms or non-Dutch parents were more likely to be classified as ‘unresolved’. Sub-sample analysis revealed stability of reaction to ASD-diagnosis. The majority of parents adapted well to the circumstances and the care for their child. Autism severity and parental nationality were significant factors affecting parental reactions. Thus, early identification of parental reaction to children’s ASD-diagnosis may aid in providing more tailored parental support programs.

摘要

本研究探讨了父母在得知孩子被诊断为自闭症谱系障碍(ASD)后的反应。77位近期孩子被诊断为此病的家长参与了“诊断反应访谈”。在这个群体中,分析了父母对诊断的反应、父母及孩子的特征与诊断前情况之间的关联。在一个子样本中,检验了对诊断反应的稳定性。大多数家长对于孩子的诊断被归类为“已解决”。相反,孩子ASD症状更严重的家长或非荷兰籍家长更有可能被归类为“未解决”。子样本分析揭示了对ASD诊断反应的稳定性。大多数家长很好地适应了相关情况以及对孩子的照料。自闭症严重程度和父母国籍是影响父母反应的重要因素。因此,尽早识别父母对孩子ASD诊断的反应可能有助于提供更具针对性的家长支持项目。

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