Popp Jill M, Robinson JoAnn L, Britner Preston A, Blank Thomas O
Connecticut Children's Medical Center, Hartford CT; Department of Pediatrics, University of Connecticut, Farmington, CT.
Department of Human Development and Family Studies, University of Connecticut, Storrs, CT.
J Pediatr Nurs. 2014 Jan-Feb;29(1):58-64. doi: 10.1016/j.pedn.2013.07.004. Epub 2013 Aug 21.
This study assessed the experience of parents who have a child diagnosed with chronic illness and whether children's narratives mirror these experiences.
A total of 66 parents completed assessments about adaptation and family functioning. Children with type 1 diabetes or asthma participated in a story-stem narrative task.
Forty-one percent of parents were unresolved about their child's diagnosis, regardless of time since diagnosis. Unresolved parents reported lower family functioning, and children in these families had more family conflict themes.
Parental/Child narratives may provide unique insights into family adjustment. Future work may consider interventions related to family communication and expression of emotion.
本研究评估了孩子被诊断患有慢性病的父母的经历，以及孩子的叙述是否反映了这些经历。
共有66位父母完成了关于适应和家庭功能的评估。患有1型糖尿病或哮喘的儿童参与了故事主干叙述任务。
41%的父母对孩子的诊断尚未释怀，无论诊断后过去了多长时间。尚未释怀的父母报告说家庭功能较低，这些家庭中的孩子有更多的家庭冲突主题。
父母/孩子的叙述可能为家庭适应提供独特的见解。未来的工作可能会考虑与家庭沟通和情感表达相关的干预措施。
