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照顾 1 型糖尿病患儿:家庭凝聚力、感知影响和父母适应之间的联系。

Caring for a child with type 1 diabetes: links between family cohesion, perceived impact, and parental adjustment.

机构信息

Faculty of Psychology and Education Sciences, University of Coimbra.

出版信息

J Fam Psychol. 2013 Oct;27(5):731-42. doi: 10.1037/a0034198. Epub 2013 Sep 9.

Abstract

This study analyzed the psychological adjustment of parents of children and adolescents with type 1 diabetes (T1D) and examined whether family cohesion and parental adjustment were connected through the perceived impact of this condition on family functioning, as well as whether these links varied according to the child's age. In total, 104 parents of children (8-12 years old) and adolescents (13-18 years old) with T1D and 142 parents of healthy children and adolescents completed self-report measures of family cohesion, parental stress, quality of life (QOL), anxious and depressive symptoms, and perceived impact of chronic illness. The results indicated that the parents of children and adolescents with T1D were more anxious and perceived less family cohesion than the parents of healthy children and adolescents. No significant differences were found on depressive symptoms, QOL, and parental stress. The hypothesized moderated mediation model showed that parents who perceived their family environments as more supportive and caring tended to evaluate the impact of T1D on their families less negatively; in turn, this perception was associated with better QOL and less parental stress and anxious and depressive symptoms. These associations were independent of the children's age. Based on a risk and resistance framework, this study highlighted the relevance of the perceived impact of T1D on the family as a mechanism explaining the link between cohesion and parental adjustment. Family-centered interventions that help parents better cope with the demands of T1D and help family members be more supportive of each other seem to be particularly useful in this context.

摘要

本研究分析了 1 型糖尿病(T1D)患儿和青少年父母的心理调整情况,并探讨了家庭凝聚力和父母调整是否通过该疾病对家庭功能的感知影响联系在一起,以及这些联系是否因孩子的年龄而异。共有 104 名 T1D 患儿(8-12 岁)和青少年(13-18 岁)的父母以及 142 名健康儿童和青少年的父母完成了家庭凝聚力、父母压力、生活质量(QOL)、焦虑和抑郁症状以及慢性病感知影响的自我报告测量。结果表明,与健康儿童和青少年的父母相比,T1D 患儿和青少年的父母更焦虑,家庭凝聚力更低。在抑郁症状、QOL 和父母压力方面没有发现显著差异。假设的中介调节模型表明,那些认为家庭环境更支持和关爱的父母往往对 T1D 对家庭的影响评价较低;反过来,这种看法与更好的 QOL 和较少的父母压力以及焦虑和抑郁症状有关。这些关联与孩子的年龄无关。基于风险和抵抗框架,本研究强调了 T1D 对家庭的感知影响作为解释凝聚力和父母调整之间联系的机制的重要性。以家庭为中心的干预措施,帮助父母更好地应对 T1D 的需求,帮助家庭成员更相互支持,在这种情况下似乎特别有用。

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