Liverpool School of Tropical Medicine, Liverpool L3 5QA, UK.
Int Health. 2011 Mar;3(1):7-14. doi: 10.1016/j.inhe.2010.09.006.
Focus group discussions (FGD) are gaining in popularity in research on HIV and tuberculosis (TB) internationally as researchers seek to understand the experiences, needs and perspectives of people living with TB and/or HIV as well as their carers within the community and health sector. Conducting FGDs in resource-poor settings with vulnerable participants who are living with diseases that are frequently stigmatised poses multiple challenges. Our approach in this discussion paper is to follow the research cycle to present the practical experience of research teams using FGDs in TB and HIV in resource-poor contexts in Africa and Asia in order to contribute to effective practice. The approach highlights dilemmas and shares effective practice for negotiating initial discussions with different communities, constructing sampling frames and samples, choosing a facilitator, encouraging discussion, ethics, translation, pitfalls and dissemination. We demonstrate the techniques and adaptations needed to ensure that FGDs provide rich, high-quality and policy-relevant data on the voices and perspectives of people living with HIV and TB, community groups and health workers within the challenges of resource-poor settings. In applying theory to develop good practice in FGDs across the research cycle, a critical and reflexive approach is needed.
焦点小组讨论(FGD)在国际上针对艾滋病毒和结核病(TB)的研究中越来越受欢迎,因为研究人员试图了解结核病和/或艾滋病毒患者以及他们在社区和卫生部门中的照顾者的经验、需求和观点。在资源匮乏的环境中,与弱势参与者进行 FGD 存在诸多挑战,这些参与者患有经常受到歧视的疾病。在本文中,我们采用研究周期的方法,介绍在非洲和亚洲资源匮乏环境中使用 FGD 进行结核病和艾滋病研究的团队的实际经验,以促进有效的实践。这种方法强调了困境,并分享了与不同社区进行初步讨论、构建抽样框架和样本、选择主持人、鼓励讨论、伦理、翻译、陷阱和传播方面的有效实践。我们展示了在资源匮乏的环境中,确保 FGD 提供有关艾滋病毒和结核病患者、社区团体和卫生工作者的声音和观点的丰富、高质量和与政策相关的数据所需的技术和适应性。在将理论应用于整个研究周期中的 FGD 实践中,需要采取批判和反思的方法。