INSERM, U707, Paris, France ; UPMC Univ Paris 06, Faculté de Médecine Pierre et Marie Curie, UMR S 707, Paris, France.
PLoS One. 2013 Sep 11;8(9):e73675. doi: 10.1371/journal.pone.0073675. eCollection 2013.
The increasing Internet coverage and the widespread use of digital devices offer the possibility to develop new digital surveillance systems potentially capable to provide important aid to epidemiological and public health monitoring and research. In France, a new nationwide surveillance system for influenza-like illness, GrippeNet.fr, was introduced since the 2011/2012 season based on an online participatory mechanism and open to the general population. We evaluate the recruitment and participation of users to the first pilot season with respect to similar efforts in Europe to assess the feasibility of establishing a participative network of surveillance in France. We further investigate the representativeness of the GrippeNet.fr population along a set of indicators on geographical, demographic, socio-economic and health aspects. Participation was widespread in the country and with rates comparable to other European countries with partnered projects running since a longer time. It was not representative of the general population in terms of age and gender, however all age classes were represented, including the older classes (65+ years old), generally less familiar with the digital world, but considered at high risk for influenza complications. Once adjusted on demographic indicators, the GrippeNet.fr population is found to be more frequently employed, with a higher education level and vaccination rate with respect to the general population. A similar propensity to commute for work to different regions was observed, and no significant difference was found for asthma and diabetes. Results show the feasibility of the system, provide indications to inform adjusted epidemic analyses, and highlight the presence of specific population groups that need to be addressed by targeted communication strategies to achieve a higher representativeness in the following seasons.
互联网覆盖范围的扩大和数字设备的广泛应用为开发新的数字监测系统提供了可能,这些系统有可能为流行病学和公共卫生监测和研究提供重要帮助。在法国,自 2011/2012 季节以来,基于在线参与机制并向公众开放,引入了一种新的全国性流感样疾病监测系统-GrippeNet.fr。我们评估了该系统在第一个试点季节的用户招募和参与情况,以评估在法国建立参与式监测网络的可行性,同时还根据地理、人口统计学、社会经济和健康等方面的一系列指标,调查了 GrippeNet.fr 人群的代表性。该系统在全国范围内的参与度很广泛,参与率与其他欧洲国家的合作伙伴项目相当,这些项目已经运行了更长时间。然而,就年龄和性别而言,它并不代表一般人群,但是所有年龄段都有代表,包括年龄较大的群体(65 岁以上),他们通常对数字世界不太熟悉,但被认为是流感并发症的高风险人群。一旦根据人口统计学指标进行调整,GrippeNet.fr 人群的就业比例更高,教育程度更高,接种疫苗的比例也更高。观察到人们有类似的通勤意愿,前往不同地区工作,而哮喘和糖尿病的比例没有显著差异。研究结果表明该系统具有可行性,为调整后的流行分析提供了参考,并强调了存在需要通过有针对性的沟通策略来解决的特定人群,以在未来的季节中提高代表性。