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测量接受口面部裂隙治疗儿童的生活质量影响:一项病例对照研究。

Measuring the impact of quality of life of children treated for orofacial clefts: a case-control study.

作者信息

Tannure P N, Soares F M M, Küchler E C, Motta L G, Costa M C, Granjeiro J M

机构信息

Department of Pediatric Dentistry and Orthodontics, School of Dentistry, Federal University of Rio de Janeiro, RJ, Brazil.

出版信息

J Clin Pediatr Dent. 2013 Summer;37(4):381-4. doi: 10.17796/jcpd.37.4.f185423j04m66753.

Abstract

OBJECTIVE

The aim of this study was to assess the quality of life (QoL) of children previously treated for cleft lip and/or palate (CL/P) and compare with non-cleft children.

METHOD

A case-control study with 70 children between 5 and 12 years old was carried out. The case group consisted of 35 individuals previously treated for non-syndromic CL/P and presently receiving assessment at a rehabilitation hospital in Brazil. The children had received primary surgical treatment for CL/P reconstruction during early childhood. The control group consisted of 35 healthy children selected to ensure close similarity to the cleft group in age, gender and socioeconomic status. QoL was measured using the AUQEI questionnaire.

RESULTS

Cleft lip and palate had no significant influence on the QoL in children (p = 0.44). A higher percentage of the cleft lip and palate group of children reported a lower QoL than the cleft lip or cleft palate groups. Gender had no significant difference on the quality of life in CL/P children (p = 0.2) and in control group (p = 1.0).

CONCLUSION

The QoL in children with CL/P was found to be similar to the non-cleft group. Our results confirm that clefts repaired during earlier childhood associated with a health care program, including psychological support, is beneficial for CL/P children.

摘要

目的

本研究旨在评估曾接受唇腭裂(CL/P)治疗的儿童的生活质量(QoL),并与非唇腭裂儿童进行比较。

方法

开展了一项针对70名5至12岁儿童的病例对照研究。病例组由35名曾接受非综合征性CL/P治疗且目前正在巴西一家康复医院接受评估的个体组成。这些儿童在幼儿期接受了CL/P重建的初次手术治疗。对照组由35名健康儿童组成,选择这些儿童以确保在年龄、性别和社会经济地位方面与唇腭裂组密切相似。使用AUQEI问卷测量生活质量。

结果

唇腭裂对儿童的生活质量没有显著影响(p = 0.44)。与唇裂或腭裂组相比,唇腭裂组中报告生活质量较低的儿童比例更高。性别对CL/P儿童和对照组的生活质量均无显著差异(CL/P儿童中p = 0.2,对照组中p = 1.0)。

结论

发现CL/P儿童的生活质量与非唇腭裂组相似。我们的结果证实,在幼儿期进行修复并伴有包括心理支持在内的医疗保健计划的腭裂对CL/P儿童有益。

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