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唇腭裂对学龄前儿童及其父母口腔健康相关生活质量的影响。

Impact of oral clefts on the oral health-related quality of life of preschool children and their parents.

作者信息

Zeraatkar M, Ajami S, Nadjmi N, Golkari A

机构信息

Department of Dental Public Health, Oral and Dental Disease Research Center, Shiraz University of Medical Sciences, Shiraz, Iran.

Department of Orthodontics, Orthodontic Research Center, Shiraz University of Medical Sciences, Shiraz, Iran.

出版信息

Niger J Clin Pract. 2018 Sep;21(9):1158-1163. doi: 10.4103/njcp.njcp_426_17.

DOI:10.4103/njcp.njcp_426_17
PMID:30156201
Abstract

OBJECTIVE

To assess the oral health-related quality of life (OHRQoL) of preschool children with cleft lip and palate (CLP) and their relatives.

MATERIALS AND METHODS

In this cross-sectional study, 55 2-5-year-old children with the history of CLP were randomly selected from those referred to Shiraz Lip and Palate Cleft Research Center and treated with single-stage closure (Push back palatoplasty). Furthermore, same number of children with the same age who attended the Shiraz School of Dentistry for routine dental care were selected as control group using randomized sampling. Children's demographic data were obtained from their parents. Farsi version of the Early Childhood Oral Health Impact Scale (F-ECOHIS) was used for evaluating these children's QoL.

RESULTS

We found a significant difference in OHRQoL between children with CLP and children without CLP in the overall score of F-ECOHIS and all of subscales. In the impact on children subscale, the difference between these groups was remarkable in limitations' domain. As for difficulties faced by children, question on "difficulty in pronouncing words" had the highest average score. Furthermore, in impact on family, in parental distress domain, the difference between these groups was remarkable. For difficulties faced by family, financial impact got the highest average score. No significant difference was found between boys and girls with CLP in all subscales. While according to the score of total F-ECOHIS in unilateral and bilateral CLP children, there was statistically significant difference in these groups.

CONCLUSION

Since oral clefts affect the QoL of children and their families even after the usual treatments, the implementation and maintenance of multidisciplinary interventional strategies are required for establishment of facial esthetics, oral function, and psychological support for such individuals.

摘要

目的

评估唇腭裂(CLP)学龄前儿童及其亲属的口腔健康相关生活质量(OHRQoL)。

材料与方法

在这项横断面研究中,从转诊至设拉子唇腭裂研究中心并接受一期闭合术(后推腭裂修复术)治疗的患儿中随机选取55名2至5岁有CLP病史的儿童。此外,采用随机抽样的方法,选取相同数量在设拉子牙科学院接受常规牙科护理的同龄儿童作为对照组。儿童的人口统计学数据从其父母处获取。使用波斯语版的幼儿口腔健康影响量表(F-ECOHIS)评估这些儿童的生活质量。

结果

我们发现,CLP患儿与非CLP患儿在F-ECOHIS总分及所有子量表方面的OHRQoL存在显著差异。在对儿童的影响子量表中,这些组在限制领域的差异显著。至于儿童面临的困难,“发音困难”问题的平均得分最高。此外,在对家庭的影响方面,在父母苦恼领域,这些组之间的差异显著。对于家庭面临的困难,经济影响的平均得分最高。CLP患儿中男孩和女孩在所有子量表方面均未发现显著差异。而根据单侧和双侧CLP患儿的F-ECOHIS总分,这些组之间存在统计学显著差异。

结论

由于即使经过常规治疗,口腔裂隙仍会影响儿童及其家庭的生活质量,因此需要实施和维持多学科干预策略,以建立此类个体的面部美观、口腔功能和心理支持。

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