Department of Health Policy and Management, Fielding School of Public Health, University of California, Los Angeles, CA, USA.
Disabil Health J. 2013 Oct;6(4):303-16. doi: 10.1016/j.dhjo.2013.05.001. Epub 2013 Jun 30.
Limited scientific evidence is available regarding D/deaf women's breast cancer knowledge and early detection practices, as well as about how to increase D/deaf women's breast cancer control practices.
OBJECTIVE/HYPOTHESIS: To assess baseline breast cancer knowledge and practices among a sample of D/deaf women recruited into a randomized controlled trial of a breast cancer education program developed for this population.
A written and signed (American Sign Language) survey was administered to a racially/ethnically diverse sample of 209 D/deaf women, 40+ years old, with lower levels of education, recruited in California between October 2008 and May 2009.
There were misconceptions about breast cancer risk factors, screening, and treatment; only 64.2% of respondents correctly identified the purpose of mammography. Mammography in the prior 2 years was reported by 57.3% of the sample, by 69.8% of White women, and by 43.5% of women from other racial/ethnic groups. Rates also varied by education, having seen a physician in the prior year, and type of insurance.
This study underscores significant gaps in breast cancer screening knowledge and practices, communication issues in health care settings, and unmet needs for tailored health information and materials in this population. Challenges faced in conducting the research needed to develop and test such programs are noted.
关于聋女性的乳腺癌知识和早期检测实践，以及如何增加聋女性的乳腺癌控制实践，科学证据有限。
目的/假设：评估在一项针对为该人群开发的乳腺癌教育计划的随机对照试验中招募的聋女性样本的乳腺癌知识和实践的基线情况。
对 209 名年龄在 40 岁以上、受教育程度较低的、种族/民族多样化的聋女性进行了书面和签署的（美国手语）调查。这些女性是 2008 年 10 月至 2009 年 5 月期间在加利福尼亚州招募的。
存在关于乳腺癌危险因素、筛查和治疗的误解；只有 64.2%的受访者正确识别了乳房 X 光检查的目的。在过去的 2 年内，57.3%的样本接受过乳房 X 光检查，白人女性为 69.8%，其他种族/族裔群体的女性为 43.5%。这些比率还因教育程度、过去一年是否看过医生以及保险类型而有所不同。
这项研究强调了在乳腺癌筛查知识和实践、医疗保健环境中的沟通问题以及该人群中对量身定制的健康信息和材料的需求方面存在显著差距。还注意到了在开展此类计划的开发和测试所需的研究方面面临的挑战。
