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[严重身体残疾患者的非运动性交流:神经科学研究成果与患者自主性]

[Motor-independent communication by severely physically challenged patients: neuroscientific research results and patient autonomy].

作者信息

Brukamp K

机构信息

Arbeitsbereich Geschichte der Medizin, Universitätsmedizin Rostock, Universität Rostock, Doberaner Str. 140, Raum 302/03, 18057, Rostock, Deutschland.

出版信息

Nervenarzt. 2013 Oct;84(10):1190-5. doi: 10.1007/s00115-013-3813-9.

Abstract

Motor-independent communication is a novel diagnostic and therapeutic method that is currently in development in order to enable communication with severely physically challenged patients. Some patients with locked-in syndromes or with chronic disorders of consciousness are capable of modulating their brain activities to such a degree that the latter can be analyzed regarding communicative intentions with neuroscientific technologies, such as functional magnetic resonance imaging. Further scientific development and an increasing clinical use of motor-independent communication will aid in meeting essential quality standards for this method. In particular, the requirements need to be clarified under which the method may be utilized to support the patients' autonomy by enabling them to make their own decisions about therapeutic interventions. Communication mediated by technology promises to significantly improve the quality of life for severely physically challenged patients.

摘要

非运动性沟通是一种目前正在研发的新型诊断和治疗方法,旨在实现与严重身体残疾患者的沟通。一些患有闭锁综合征或慢性意识障碍的患者能够将其大脑活动调节到一定程度,从而可以通过功能磁共振成像等神经科学技术分析其沟通意图。非运动性沟通的进一步科学发展和临床应用的增加将有助于满足该方法的基本质量标准。特别是,需要明确在哪些要求下可以利用该方法,通过使患者能够自主决定治疗干预措施来支持患者的自主性。技术介导的沟通有望显著提高严重身体残疾患者的生活质量。

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