Corresponding author: Ronald J. Iannotti,
Diabetes Care. 2014 Feb;37(2):346-54. doi: 10.2337/dc13-1346. Epub 2013 Oct 2.
Among the many milestones of adolescence and young adulthood, transferring from pediatric to adult care is a significant transition for those with type 1 diabetes. The aim of this study was to understand the concerns, expectations, preferences, and experiences of pretransition adolescents and parents and posttransition young adults.
Participants completed questionnaires and responded to open-ended qualitative questions regarding self-management, self-efficacy, and their expectations and experiences with pediatric and adult care providers across the transition process.
At a mean age of 16.1 years, most pretransition adolescents had not yet discussed transferring care with their parents or doctors. Although many posttransition young adults reported positive, supportive interactions, several described challenges locating or establishing a relationship with an adult diabetes care provider. Qualitative themes emerged related to the anticipated timing of transfer, early preparation for transition, the desire for developmentally appropriate interactions with providers, the maintenance of family and social support, and strategies for coordinating care between pediatric and adult care providers.
Standardizing transition preparation programs in pediatric care and introducing transition-oriented clinics for late adolescents and young adults prior to adult care may help address patients' preferences and common transfer-related challenges.
在青春期和成年早期的许多里程碑中，从儿科护理过渡到成人护理是 1 型糖尿病患者的一个重要转变。本研究旨在了解准过渡青少年及其父母以及过渡后年轻成年人在自我管理、自我效能以及对儿科和成人护理提供者的期望和体验方面的关注点、期望、偏好和体验。
参与者完成了问卷调查，并就自我管理、自我效能以及他们在整个过渡过程中对儿科和成人护理提供者的期望和体验，回答了一些开放性的定性问题。
在平均年龄为 16.1 岁时，大多数准过渡青少年尚未与父母或医生讨论过转移护理的问题。尽管许多过渡后的年轻成年人报告了积极的、支持性的互动，但也有几个人描述了在寻找或与成人糖尿病护理提供者建立关系方面的挑战。出现了与预期转移时间、早期过渡准备、与提供者进行发展适当的互动的愿望、维持家庭和社会支持以及协调儿科和成人护理提供者之间的护理的策略有关的定性主题。
在儿科护理中标准化过渡准备计划，并在成年护理之前为青少年和年轻成年人引入过渡导向的诊所，可能有助于满足患者的偏好和常见的转移相关挑战。
