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评估青少年参与1型糖尿病治疗的情况：一项关于患者报告结局工具的范围综述

Assessing Adolescent Involvement in Type 1 Diabetes Treatment: A Scoping Review of Person-Reported Outcome Instruments.

作者信息

Rokkjær Rikke Bjerre, Abild Caroline Bruun, Kristensen Kurt, Solskov Lene Juel, Jensen Annesofie Lunde

机构信息

Steno Diabetes Center Aarhus, Aarhus University Hospital, Aarhus, Denmark.

Department of Clinical Medicine, Aarhus University, Aarhus, Denmark.

出版信息

Acta Paediatr. 2025 Oct;114(10):2458-2479. doi: 10.1111/apa.70181. Epub 2025 Jun 17.

DOI:10.1111/apa.70181
PMID:40525626
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12420845/
Abstract

AIM

The aim of this study was to identify and map the content, structure, and application of person-reported outcome instruments used to assess the experience of treatment involvement among adolescents with type 1 diabetes.

METHODS

Studies were identified in PubMed, Embase, CINAHL, PsycINFO, JSTOR, and MedNar. We included studies that used instruments that assess treatment involvement among adolescents (aged 11-18 years) with type 1 diabetes. All review steps involved two reviewers. Data extraction, charting, and analysis were guided by a template focusing on the content, structure, and application of instruments.

RESULTS

This scoping review identified 23 instruments used in 52 studies, measuring different kinds of treatment involvement among adolescents with type 1 diabetes, e.g., communication with clinicians, clinicians' commitment, and shared decision-making. Both instrument length and response formats varied across instruments. Some instruments were applicable in adolescents, whereas others were suitable for use in adults.

CONCLUSION

This review details the use of several instruments assessing treatment involvement experiences among adolescents with type 1 diabetes. The findings of this review can guide clinicians and researchers on optimal instrument content, structure, and application to implement a person-centred care practice in paediatric diabetes care.

摘要

目的

本研究旨在识别和描绘用于评估1型糖尿病青少年治疗参与体验的患者报告结局工具的内容、结构及应用情况。

方法

在PubMed、Embase、CINAHL、PsycINFO、JSTOR和MedNar中检索相关研究。我们纳入了使用评估1型糖尿病青少年（11至18岁）治疗参与情况工具的研究。所有综述步骤均由两名评审员进行。数据提取、制表和分析以一个聚焦于工具内容、结构及应用的模板为指导。

结果

本范围综述识别出52项研究中使用的23种工具，这些工具测量1型糖尿病青少年不同类型的治疗参与情况，例如与临床医生的沟通、临床医生的承诺以及共同决策。工具的长度和反应格式各不相同。一些工具适用于青少年，而其他工具则适用于成年人。

结论

本综述详细介绍了几种评估1型糖尿病青少年治疗参与体验的工具的使用情况。本综述的结果可为临床医生和研究人员在儿科糖尿病护理中实施以患者为中心的护理实践时，提供关于工具最佳内容、结构及应用方面的指导。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bea5/12420845/a7fa511914bf/APA-114-2458-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bea5/12420845/a7fa511914bf/APA-114-2458-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bea5/12420845/a7fa511914bf/APA-114-2458-g001.jpg

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本文引用的文献

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Methods, strategies, and incentives to increase response to mental health surveys among adolescents: a systematic review.方法、策略和激励措施以提高青少年对心理健康调查的反应率：系统评价。
BMC Med Res Methodol. 2023 Nov 16;23(1):270. doi: 10.1186/s12874-023-02096-z.
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Introduction and Methodology: Standards of Care in Diabetes-2023.引言与方法：2023年糖尿病护理标准
Diabetes Care. 2023 Jan 1;46(Suppl 1):S1-S4. doi: 10.2337/dc23-Sint.
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Patient-reported outcome instruments for assessing the involvement of children and adolescents with type 1 diabetes in their treatment: a scoping review protocol.
用于评估 1 型糖尿病患儿和青少年参与治疗的患者报告结局工具：系统评价方案。
JBI Evid Synth. 2023 Mar 1;21(3):609-616. doi: 10.11124/JBIES-22-00105.
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Development and Validation of the Transition Readiness Assessment Instrument in Type 1 Diabetes "On TRAck".1 型糖尿病“On TRAck”过渡准备评估工具的制定与验证。
Can J Diabetes. 2022 Jul;46(5):510-517. doi: 10.1016/j.jcjd.2022.02.005. Epub 2022 Feb 11.
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Randomized controlled study to evaluate the impact of flexible patient-controlled visits in people with type 1 diabetes: The DiabetesFlex Trial.随机对照研究评估灵活的患者自控就诊对 1 型糖尿病患者的影响：DiabetesFlex 试验。
Diabet Med. 2022 May;39(5):e14791. doi: 10.1111/dme.14791. Epub 2022 Jan 18.
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