University of Wollongong, Australia.
Autism. 2014 Apr;18(3):213-22. doi: 10.1177/1362361312472261. Epub 2013 Oct 3.
A family member with an autism spectrum disorder presents pervasive and bidirectional influences on the entire family system, suggesting a need for family-focused autism spectrum disorder research. While there has been increasing interest in this research area, family-focused autism spectrum disorder research can still be considered relatively recent, and there are limitations to the existing literature. The purpose of this article is to provide theoretical and methodological directions for future family-focused autism spectrum disorder research. In particular, this article proposes Family Systems approaches as a common theoretical framework for future family-focused autism spectrum disorder research by considering theoretical concepts such as Boundaries, Ambiguous Loss, Resilience and Traumatic Growth. We discuss reasons why these concepts are important to researching families living with autism spectrum disorder and provide recommendations for future research. The potential for research grounded in Family Systems approaches to influence clinical support services is also discussed.
一名患有自闭症谱系障碍的家庭成员对整个家庭系统产生普遍而双向的影响，这表明需要进行以家庭为中心的自闭症谱系障碍研究。虽然人们对这一研究领域越来越感兴趣，但以家庭为中心的自闭症谱系障碍研究仍可被视为相对较新的领域，现有文献存在一定的局限性。本文旨在为未来以家庭为中心的自闭症谱系障碍研究提供理论和方法学方向。具体而言，本文通过考虑边界、模糊性损失、弹性和创伤性成长等理论概念，提出家庭系统方法作为未来以家庭为中心的自闭症谱系障碍研究的共同理论框架。我们讨论了这些概念对于研究自闭症谱系障碍家庭的重要性，并为未来的研究提供了建议。还讨论了以家庭系统方法为基础的研究对影响临床支持服务的潜力。
