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沙特阿拉伯父母对为自闭症谱系障碍患者及其家庭提供的服务质量的满意度。

Parental satisfaction with the quality of services provided to persons with autism spectrum disorder and their families in Saudi Arabia.

作者信息

Saleh Salwa R, Alaoufi Hiam M, Eltantawy Mahmoud Mohamed

机构信息

Department of Teaching and Learning, College of Education and Human Development, Princess Nourah bint Abdulrahman University, Riyadh, Saudi Arabia.

Department of Special Education, College of Education, Ain Shams University, Cairo, Egypt.

出版信息

Front Psychiatry. 2024 Dec 10;15:1469513. doi: 10.3389/fpsyt.2024.1469513. eCollection 2024.

Abstract

The services provided to persons with autism spectrum disorder (ASD) and their families are considered the basic factors that help families meet their needs and those of their children. These services help persons with ASD attain an appropriate level of independence within the society. Therefore, this study aimed to assess the Parents' satisfaction with the quality of services related to family guidance and education, diagnostic and evaluation services, support and intervention services, and services that aim to improve equal opportunities and life quality among persons with ASD and their parents in Saudi Arabia. This study also aimed to identify the differences in the quality of these services with regard to the age stage of the person with ASD. The study sample consisted of 301 parents of persons with ASD, including 93 fathers and 208 mothers. In this study, a quantitative approach through a questionnaire was used to collect data. Results of this study showed that the parents participating in the study reported the availability of services at an unsatisfactory level with regard to family guidance and education services, support and intervention services, and services that help to improve life quality and equal opportunities. Although the quality of diagnostic and evaluation services was satisfactory, the results indicated no differences in the quality of these services based on the ages of the persons with ASD. The results of this study indicated the importance of developing these services and subjecting them to international quality standards.

摘要

向自闭症谱系障碍(ASD)患者及其家庭提供的服务被视为帮助家庭满足自身及子女需求的基本因素。这些服务有助于ASD患者在社会中获得适当水平的独立性。因此,本研究旨在评估沙特阿拉伯ASD患者及其父母对与家庭指导和教育、诊断与评估服务、支持与干预服务以及旨在改善ASD患者及其父母平等机会和生活质量的服务相关的服务质量的满意度。本研究还旨在确定这些服务在ASD患者年龄阶段方面的质量差异。研究样本包括301名ASD患者的父母,其中93名父亲和208名母亲。在本研究中,通过问卷调查采用定量方法收集数据。本研究结果表明,参与研究的父母报告称,在家庭指导和教育服务、支持与干预服务以及有助于改善生活质量和平等机会的服务方面,服务的可获得性处于不令人满意的水平。尽管诊断与评估服务的质量令人满意,但结果表明这些服务的质量在ASD患者年龄方面没有差异。本研究结果表明了发展这些服务并使其符合国际质量标准的重要性。

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