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自闭症患儿家庭中的支持与沟通关系模式:一项诠释现象学研究。

Relational Patterns of Support and Communication in Families with a Child Diagnosed with Autism: an Interpretive Phenomenological Study.

作者信息

Romney Justin S, Fife Stephen T, Reitz Randall S, Piland Nicole, Soloski Kristy, Montgomery Allison L, Wagner Kathryn

机构信息

Kent School of Social Work and Family Sciences, University of Louisville, 2217 S 3rd St, Louisville, KY, 40292, USA.

Community, Family, and Addiction Sciences, Texas Tech University, Lubbock, TX, USA.

出版信息

J Autism Dev Disord. 2025 May 3. doi: 10.1007/s10803-025-06847-3.

DOI:10.1007/s10803-025-06847-3
PMID:40317351
Abstract

BACKGROUND

The impact of autism spectrum disorder (ASD) can be far-reaching for families. Research has shown that neurotypical (NT) siblings can experience negative and positive implications of ASD in their lives. However, researchers have not fully captured the factors associated with successful adaptation to the range of experiences, particularly regarding NT siblings and the relational support from and communication with their parents.

METHODS

We utilized an interpretive phenomenological analysis to illuminate and better understand NT siblings' experiences of parental support and communication.

RESULTS

Analysis of qualitative semi-structured interviews with seven families of parents with at least one sibling over the age of 10 (N = 22) yielded four significant themes: (a) targeted NT sibling time, (b) targeted NT sibling communication, (c) sibling expectations, and (d) understanding autism.

CONCLUSION

The findings regarding relational support patterns suggest that NT siblings' experience with autism is positively influenced by parents who dedicate time to the NT siblings, communicate openly with them, and educate them about autism.

摘要

背景

自闭症谱系障碍(ASD)对家庭的影响可能是深远的。研究表明,神经典型(NT)的兄弟姐妹在生活中可能会经历ASD带来的负面和正面影响。然而,研究人员尚未完全掌握与成功适应一系列经历相关的因素,特别是关于NT兄弟姐妹以及他们从父母那里获得的关系支持和与父母的沟通。

方法

我们采用解释性现象学分析来阐明并更好地理解NT兄弟姐妹对父母支持和沟通的体验。

结果

对七个家庭(每个家庭至少有一个10岁以上的兄弟姐妹,N = 22)的父母进行定性半结构化访谈的分析产生了四个重要主题:(a)针对NT兄弟姐妹的时间,(b)针对NT兄弟姐妹的沟通,(c)兄弟姐妹的期望,以及(d)对自闭症的理解。

结论

关于关系支持模式的研究结果表明,NT兄弟姐妹对自闭症的体验受到父母的积极影响,这些父母会花时间陪伴NT兄弟姐妹,与他们坦诚沟通,并向他们介绍自闭症相关知识。

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本文引用的文献

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A Systematic Review of Family Functioning in Families of Children on the Autism Spectrum.自闭症谱系儿童家庭功能的系统评价
J Autism Dev Disord. 2024 Mar;54(3):1036-1057. doi: 10.1007/s10803-022-05830-6. Epub 2023 Jan 10.
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A systematic review of the experience of being a sibling of a child with an autism spectrum disorder.自闭症谱系障碍儿童的同胞经历的系统评价。
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The effects of early autism intervention on parents and family adaptive functioning.
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An application of Bowen family systems theory.鲍文家庭系统理论的一种应用。
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Autism. 2014 Apr;18(3):213-22. doi: 10.1177/1362361312472261. Epub 2013 Oct 3.
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The adjustment of non-disabled siblings of children with autism.自闭症儿童非残疾兄弟姐妹的适应情况。
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