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中文版海滩中心自闭症儿童家庭生活质量量表在中国内地自闭症儿童家庭中的信效度研究

The reliability and validity of a Chinese version of the Beach Center Family Quality of Life Scale in Mainland China for families of children with autism.

作者信息

Liu Lu, Xie Lang-Fang, Xing Yi-Pei, Wang Yu, Ji Yue, Chen Miao-Ying, Zhao Shuo, Wang Fang, Li Hai

机构信息

Department of Rehabilitation Medicine, Shenzhen Hospital, Southern Medical University, Shenzhen, Guangdong, China.

Southern Medical University, Guangzhou, Guangdong, China.

出版信息

BMC Pediatr. 2025 Apr 11;25(1):285. doi: 10.1186/s12887-025-05649-x.

DOI:10.1186/s12887-025-05649-x
PMID:40217189
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11987452/
Abstract

PURPOSE

The objective of this study was to translate the Family Quality of Life (FQOL) Scale into simplified Chinese and assess its reliability and validity in mainland China for families of children with autism.

METHODS

The FQOL Scale was professionally translated from English into simplified Chinese using a forward-backward process. We conducted a survey in which families with autistic kids were asked to participate, it comprised of a general condition questionnaire and the FQOL Scale translated to Chinese. A total of 402 families took part in the study, out of which 333 data sets were complete and available for analysis. The FQOL Scale model was subject to exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) to probe its scale dimensional design and structure, as well as its adaptability to autistic children and their families using SPSS AMOS 24.0. The internal consistency and reliability was examined using Cronbach's α (SPSS 22.0). And stepwise regression analysis was conducted to predict parents' attitudes towards prognosis based on the five dimensions of the modified Chinese version of the FQOL Scale (SPSS 22.0).

RESULTS

The data analysis yielded a revised Chinese version of the FQOL Scale. The analysis revealed that the overall reliability coefficient of the scale, as indicated by Cronbach's α, was 0.918. The results of the CFA provided support for the best fit of a five-factor model (χ2 = 285.237, CFI = 0.930, TLI = 0.916, SRMR = 0.061, RMSEA = 0.062). The predictive equation for parents' attitudes towards prognosis based on the five-dimensional model of the modified Chinese version of the FQOL Scale was as follows: Parent prognostic attitude = -0.863 + 0.456* Parenting + 0.2* Physical/Material Well-being.

CONCLUSION

The modified Chinese version of the FQOL Scale is suitable in mainland China for families of children with autism and has good reliability and model fit. The two dimensions of Parenting and Physical/Material Well-being can significantly predict parents' prognostic attitude, indicating that the better the status of Parenting and Physical/Material Well-being, the better the parents' prognosis attitude.

摘要

目的

本研究旨在将家庭生活质量(FQOL)量表翻译成简体中文,并评估其在中国大陆自闭症儿童家庭中的信效度。

方法

采用正反翻译法将FQOL量表从英文专业翻译成简体中文。我们进行了一项调查,邀请自闭症儿童家庭参与,该调查包括一份一般情况问卷和翻译成中文的FQOL量表。共有402个家庭参与了研究,其中333个数据集完整且可供分析。使用SPSS AMOS 24.0对FQOL量表模型进行探索性因子分析(EFA)和验证性因子分析(CFA),以探究其量表维度设计和结构,以及其对自闭症儿童及其家庭的适应性。使用Cronbach's α(SPSS 22.0)检验内部一致性和信度。并基于修订后的中文版FQOL量表的五个维度进行逐步回归分析,以预测父母对预后的态度(SPSS 22.0)。

结果

数据分析得出了修订后的中文版FQOL量表。分析显示,量表的总体信度系数(Cronbach's α)为0.918。CFA结果支持五因素模型的最佳拟合(χ2 = 285.237,CFI = 0.930,TLI = 0.916,SRMR = 0.061,RMSEA = 0.062)。基于修订后的中文版FQOL量表五维模型的父母对预后态度的预测方程如下:父母预后态度 = -0.863 + 0.456 * 育儿 + 0.2 * 身体/物质福祉。

结论

修订后的中文版FQOL量表适用于中国大陆自闭症儿童家庭,具有良好的信度和模型拟合度。育儿和身体/物质福祉这两个维度可以显著预测父母的预后态度,表明育儿和身体/物质福祉状况越好,父母的预后态度越好。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9d62/11987452/ad7f2d9f729f/12887_2025_5649_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9d62/11987452/ad7f2d9f729f/12887_2025_5649_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9d62/11987452/ad7f2d9f729f/12887_2025_5649_Fig1_HTML.jpg

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Psychometric Properties of the Beach Center Family Quality of Life in French-Speaking Families With a Preschool-Aged Child Diagnosed With Autism Spectrum Disorder.
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