Bofill Lina Margarita, Lopez Maria, Dorigo Analia, Bordato Alejandra, Lucas Mar, Cabanillas Graciela Fernandez, Sued Omar, Cahn Pedro, Cassetti Isabel, Weiss Stephen, Jones Deborah
a Department of Psychiatry and Behavioral Sciences , University of Miami, Miller School of Medicine , Miami , FL , USA.
AIDS Care. 2014;26(5):602-7. doi: 10.1080/09540121.2013.844767. Epub 2013 Oct 21.
Approximately 30% of patients participating in the national antiretroviral therapy (ART) program in Argentina fail to achieve an undetectable viral load, and approximately 25% are not retained in care. This qualitative study was designed to explore and identify factors associated with engagement and retention in public and private health care in Buenos Aires, Argentina. Qualitative data from key informants (n = 12) and focus groups (n = 4 groups) of patients and providers from private and public HIV treatment facilities were recorded and transcribed. Predetermined and arising themes related to adherence, engagement, and retention in care were coded and analyzed using qualitative data analysis software. Reasons identified for patients' lack of adherence or engagement in care differed between patients and providers, and patients attributed limitations to low self-efficacy, fear and concerns about HIV, and lack of provider involvement in treatment. In contrast, providers viewed themselves as decision-makers in patient care and patients as responsible for their own nonadherence due to lack of commitment to their own health or due to medication side effects. Patients reported health care system limitations and HIV concerns contributed to a lack of engagement, and providers identified limited HIV literacy and stigma as additional problems. Both agreed that chronic illness and substance addiction impacted adherence and retention, and agreed on the importance of trust, honesty, and communication in the patient-provider relationship. Results support the incorporation of system-, provider-, and patient-focused components into interventions to facilitate patient engagement, adherence, and retention in public and private settings in Argentina.
在阿根廷参与国家抗逆转录病毒疗法(ART)项目的患者中,约30%未能实现病毒载量检测不到,约25%未持续接受治疗。这项定性研究旨在探索和确定与阿根廷布宜诺斯艾利斯市公立和私立医疗保健机构中患者参与度及治疗持续性相关的因素。记录并转录了来自公立和私立HIV治疗机构的关键信息提供者(n = 12)以及患者和提供者焦点小组(n = 4组)的定性数据。使用定性数据分析软件对与依从性、参与度和治疗持续性相关的预定主题及新出现的主题进行编码和分析。患者和提供者对于患者缺乏治疗依从性或参与度的原因看法不同,患者将其归因于自我效能感低、对HIV的恐惧和担忧以及医护人员缺乏对治疗的参与。相比之下,医护人员认为自己是患者治疗的决策者,而患者因对自身健康缺乏责任感或药物副作用而对自己的不依从负责。患者报告称医疗保健系统的局限性和对HIV的担忧导致缺乏参与度,医护人员则指出HIV知识有限和耻辱感是另外的问题。双方都认为慢性病和药物成瘾会影响依从性和治疗持续性,并认同信任、诚实和沟通在医患关系中的重要性。研究结果支持将以系统、医护人员和患者为重点的要素纳入干预措施,以促进阿根廷公立和私立医疗机构中患者的参与度、依从性和治疗持续性。