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智障人士健康促进的主题、方法和挑战:文献的结构化综述。

Topics, methods and challenges in health promotion for people with intellectual disabilities: a structured review of literature.

机构信息

Radboud University Medical Centre, Department of Primary and Community Health Care, Nijmegen, The Netherlands.

出版信息

Res Dev Disabil. 2013 Dec;34(12):4534-45. doi: 10.1016/j.ridd.2013.09.029. Epub 2013 Oct 23.

Abstract

People with intellectual disabilities (ID) experience substantial health inequities compared, with the general population. Many secondary conditions and lifestyle related health problems could be, prevented with adequate health promotion. The aim of this structured review is to provide insight into, the main characteristics of published health promotion intervention studies for people with ID and, in, doing so, to identify best practice and knowledge gaps. Relevant studies were identified through a, structured literature search of multiple electronic databases (PubMed, CINHAS, Scopus, PsychINFO), the search strategy covered health promotion and intellectual disabilities for available papers, published between February 2002 and 2012. In total, 25 studies were included and analyzed. Overall, studies were diverse and explored a variety of health issues. Papers included a variety of participants (in relation to level of disability) and intervention approaches. With regard to quality, many studies, failed to report how they recruited their participants, and there were substantial challenges identified, by authors in relation to recruitment, implementation of interventions, and the selection of outcome, measures used as well as the usability of measures themselves. Our findings suggest that this field, experiences methodological weaknesses and inconsistencies that make it difficult to compare and, contrast results. Theoretically driven studies that take into account the views and expectations of, participants themselves are needed, as is research that investigates the reliability and validity of, outcome measures for the ID population. Collaboration with mainstream health promotion research is, critical.

摘要

与普通人群相比,智力残疾(ID)人群存在着明显的健康不平等现象。许多继发性疾病和与生活方式相关的健康问题,可以通过充分的健康促进来预防。本综述的目的是深入了解已发表的智力障碍人群健康促进干预研究的主要特征,并在此过程中确定最佳实践和知识差距。通过对多个电子数据库(PubMed、CINHAS、Scopus、PsychINFO)进行有组织的文献检索,确定了相关研究,检索策略涵盖了 2002 年 2 月至 2012 年期间可获得的关于健康促进和智力残疾的论文。总共纳入并分析了 25 项研究。总体而言,这些研究具有多样性,探讨了各种健康问题。论文包括各种参与者(与残疾程度有关)和干预方法。就质量而言,许多研究未能报告他们如何招募参与者,作者在招募、干预实施以及选择结果衡量标准方面遇到了重大挑战,以及衡量标准的可用性本身。我们的研究结果表明,该领域存在方法学上的弱点和不一致性,使得难以比较和对比结果。需要有理论驱动的研究,考虑到参与者自身的观点和期望,还需要研究调查智力障碍人群的结果衡量标准的可靠性和有效性。与主流健康促进研究的合作至关重要。

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