Monsivais Diane B
(Assistant Professor), School of Nursing, The University of Texas at El Paso, El Paso, Texas.
J Am Assoc Nurse Pract. 2013 Oct;25(10):551-556. doi: 10.1111/1745-7599.12010. Epub 2013 Feb 27.
To describe stigmatizing experiences in a group of Mexican-American women with chronic pain and provide clinical implications for decreasing stigma.
This focused ethnographic study derived data from semistructured interviews, participant observations, and fieldwork. Participants provided detailed descriptions of communicating about chronic pain symptoms, treatment, and management. The sample consisted of 15 English-speaking Mexican-American women 21-65 years old (average age = 45.6 years) who had nonmalignant chronic pain symptoms for 1 year or more.
The cultural and social norm in the United States is the expectation for objective evidence (such as an injury) to be present if a pain condition exists. In this study, this norm created suspicion and subsequent stigmatization on the part of family, co-workers, and even those with the pain syndromes, that the painful condition was imagined instead of real.
To decrease stigmatization of chronic pain, providers must understand their own misconceptions about chronic pain, possess the skills and resources to access and use the highest level of practice evidence available, and become an advocate for improved pain care at local, state, and national levels.
描述一群患有慢性疼痛的墨西哥裔美国女性所遭受的污名化经历,并为减少污名化提供临床启示。
这项重点民族志研究的数据来自半结构化访谈、参与观察和实地调查。参与者详细描述了关于慢性疼痛症状、治疗和管理的交流情况。样本包括15名年龄在21至65岁(平均年龄 = 45.6岁)的讲英语的墨西哥裔美国女性,她们患有非恶性慢性疼痛症状达1年或更长时间。
在美国,文化和社会规范是如果存在疼痛状况,期望有客观证据(如受伤)。在本研究中,这种规范导致家人、同事甚至患有疼痛综合征的人产生怀疑并随后进行污名化,认为疼痛状况是想象出来的而非真实存在。
为减少对慢性疼痛的污名化,医疗服务提供者必须了解自己对慢性疼痛的误解,具备获取和使用现有最高水平实践证据的技能和资源,并成为在地方、州和国家层面改善疼痛护理的倡导者。