Department of Neurology, Sveti Duh University Hospital, Zagreb, Croatia.
Department of Neurology, Sveti Duh University Hospital, Zagreb, Croatia.
Seizure. 2014 Feb;23(2):117-21. doi: 10.1016/j.seizure.2013.10.008. Epub 2013 Oct 26.
It is believed that a large number of factors influence feelings of stigma, but their relative contribution is not yet entirely clear. Most studies to date were conducted using the Epilepsy Stigma Scale (ESS); only one used a revised version of the ESS (rESS). The following study aims to determine factors contributing to epilepsy stigma in outpatients with chronic epilepsy in Croatia, and to analyze some psychometric properties of the Croatian translation of the rESS.
Alongside standard testing for validity of the scale, a simulation model of the original ESS (smESS) was created. This model, which does not include a grading Likert 0-3 scale, was compared with the rESS.
In total, 159 out of 298 subjects (53%) reported feeling stigmatised, with 136 (45%) mild to moderately and 23 (8%) highly. Internal consistency of the Croatian translation of the rESS was 0.887. Feelings of stigma were significantly associated with age ≤ 50 years, younger age of epilepsy onset, more than 50 seizures to date, generalized tonic-clonic seizures, and a shorter seizure-free period. Multiple stepwise regression showed number of seizures to date as a significant variable (Beta=0.246). By adapting data into the smESS significant associations with younger age and age of epilepsy onset were lost. Internal consistency of the smESS was 0.849.
The Croatian translation of the rESS has been proved to be a suitable instrument for diagnosing epilepsy stigma. The results of our model point to the possibility that the rESS might be more sensitive than the original ESS.
人们认为许多因素会影响耻辱感，但它们的相对贡献尚不完全清楚。迄今为止，大多数研究都是使用癫痫耻辱量表（ESS）进行的；只有一项研究使用了修订版的 ESS（rESS）。本研究旨在确定克罗地亚慢性癫痫门诊患者癫痫耻辱感的相关因素，并分析 rESS 克罗地亚语翻译的一些心理测量学特性。
除了对量表的效度进行标准测试外，还创建了原始 ESS 的模拟模型（smESS）。该模型不包含分级李克特 0-3 量表，并与 rESS 进行了比较。
共有 298 名患者中的 159 名（53%）报告有耻辱感，其中 136 名（45%）为轻度至中度，23 名（8%）为高度。rESS 的克罗地亚语翻译的内部一致性为 0.887。耻辱感与年龄≤50 岁、癫痫发病年龄较小、目前发作次数超过 50 次、全面强直阵挛发作以及无发作期较短显著相关。多元逐步回归显示目前发作次数是一个显著变量（Beta=0.246）。通过将数据纳入 smESS，与年龄较小和癫痫发病年龄相关的显著关联丧失。smESS 的内部一致性为 0.849。
rESS 的克罗地亚语翻译已被证明是一种用于诊断癫痫耻辱感的合适工具。我们模型的结果表明，rESS 可能比原始 ESS 更敏感。
