Johnson Norah L, Bekhet Abir, Robinson Karen, Rodriguez Dana
J Pediatr Health Care. 2014 Sep-Oct;28(5):386-93. doi: 10.1016/j.pedhc.2013.10.001. Epub 2013 Nov 14.
Understanding is limited of the meaning attributed to behaviors of children with autism spectrum disorder and strategies used to prevent challenging behaviors in the context of hospitalization.
This qualitative study consisted of two focus groups (n = 10; five mothers and five health care providers [HCPs]). Transcripts were analyzed using the qualitative method of narrative inquiry.
The meaning attributed to behaviors by the mothers and the HCPs differed. The mothers attributed behaviors to the child's communication of frustration, hyperactivity, and self-calming. The HCPs attributed challenging behaviors to self-stimulation and child aggression. Strategies to prevent behaviors also differed. Mothers focused on preparation prior to hospitalization and attempts to partner with HCPs. HCPs identified fewer strategies and consulted mothers for strategies to manage challenging behaviors.
HCP and parent collaboration could lead to strategies to increase supports for children with autism spectrum disorder in the hospital to decrease their frustration and challenging behaviors.
对于自闭症谱系障碍儿童行为的意义以及在住院情况下用于预防具有挑战性的行为的策略,人们的理解有限。
这项定性研究包括两个焦点小组(n = 10;五名母亲和五名医疗保健提供者[HCPs])。使用叙事探究的定性方法对转录本进行分析。
母亲和医疗保健提供者赋予行为的意义有所不同。母亲将行为归因于孩子表达沮丧、多动和自我平静的方式。医疗保健提供者将具有挑战性的行为归因于自我刺激和儿童攻击行为。预防行为的策略也有所不同。母亲们关注住院前的准备工作以及尝试与医疗保健提供者合作。医疗保健提供者确定的策略较少,并向母亲咨询管理具有挑战性的行为的策略。
医疗保健提供者和家长的合作可能会产生一些策略,以增加对医院中自闭症谱系障碍儿童的支持,从而减少他们的沮丧情绪和具有挑战性的行为。