Cimino James J, Ayres Elaine J, Remennik Lyubov, Rath Sachi, Freedman Robert, Beri Andrea, Chen Yang, Huser Vojtech
Laboratory for Informatics Development, NIH Clinical Center, Bethesda, MD, United States.
Laboratory for Informatics Development, NIH Clinical Center, Bethesda, MD, United States.
J Biomed Inform. 2014 Dec;52:11-27. doi: 10.1016/j.jbi.2013.11.004. Epub 2013 Nov 19.
The US National Institutes of Health (NIH) has developed the Biomedical Translational Research Information System (BTRIS) to support researchers' access to translational and clinical data. BTRIS includes a data repository, a set of programs for loading data from NIH electronic health records and research data management systems, an ontology for coding the disparate data with a single terminology, and a set of user interface tools that provide access to identified data from individual research studies and data across all studies from which individually identifiable data have been removed. This paper reports on unique design elements of the system, progress to date and user experience after five years of development and operation.
美国国立卫生研究院(NIH)开发了生物医学转化研究信息系统(BTRIS),以支持研究人员获取转化数据和临床数据。BTRIS包括一个数据存储库、一组用于从NIH电子健康记录和研究数据管理系统加载数据的程序、一个用于用单一术语对不同数据进行编码的本体,以及一组用户界面工具,这些工具可提供对来自个别研究的已识别数据以及所有已去除可识别个人身份数据的研究中的数据的访问。本文报告了该系统的独特设计元素、迄今为止的进展以及经过五年开发和运营后的用户体验。