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Part I: what is the requirement for data sharing?第一部分：数据共享的要求是什么？
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Engagement with a diverse Stakeholder Advisory Council for research in dementia care.与一个多元化的利益相关者咨询委员会合作开展痴呆症护理研究。
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本文引用的文献

1
Involving service users in trials: developing a standard operating procedure.将服务使用者纳入试验中：制定标准操作规程。
Trials. 2013 Jul 17;14:219. doi: 10.1186/1745-6215-14-219.
2
Do not forget the professional--the value of the FIRST model for guiding the structural involvement of patients in rheumatology research.不要忘记专业人士——用于指导患者参与风湿病研究结构方面的FIRST模型的价值。
Health Expect. 2015 Aug;18(4):489-503. doi: 10.1111/hex.12048. Epub 2013 Jan 31.
3
Designing a placebo device: involving service users in clinical trial design.设计安慰剂装置：让服务使用者参与临床试验设计。
Health Expect. 2013 Dec;16(4):e100-10. doi: 10.1111/hex.12043. Epub 2013 Jan 14.
4
'The missing links': understanding how context and mechanism influence the impact of public involvement in research.缺失的环节：理解背景和机制如何影响公众参与研究的效果
Health Expect. 2014 Dec;17(6):755-64. doi: 10.1111/hex.12017. Epub 2012 Oct 29.
5
Mapping the impact of patient and public involvement on health and social care research: a systematic review.探究患者及公众参与对健康和社会照护研究的影响：一项系统综述
Health Expect. 2014 Oct;17(5):637-50. doi: 10.1111/j.1369-7625.2012.00795.x. Epub 2012 Jul 19.
6
Theoretical directions for an emancipatory concept of patient and public involvement.患者和公众参与的解放概念的理论方向。
Health (London). 2012 Sep;16(5):531-47. doi: 10.1177/1363459312438563. Epub 2012 Apr 25.
7
Public involvement in setting a national research agenda: a mixed methods evaluation.公众参与制定国家研究议程：混合方法评价。
Patient. 2009 Sep 1;2(3):179-90. doi: 10.2165/11314860-000000000-00000.
8
Involvement of consumers in studies run by the Medical Research Council Clinical Trials Unit: results of a survey.消费者参与医学研究理事会临床试验单位开展的研究：调查结果。
Trials. 2012 Jan 13;13:9. doi: 10.1186/1745-6215-13-9.
9
The GRIPP checklist: strengthening the quality of patient and public involvement reporting in research.GRIPP 清单：提高患者和公众参与研究报告的质量。
Int J Technol Assess Health Care. 2011 Oct;27(4):391-9. doi: 10.1017/S0266462311000481.
10
Public and patient involvement at the UK National Institute for Health and Clinical Excellence.英国国家卫生与临床优化研究所的公众和患者参与。
Patient. 2011;4(1):1-10. doi: 10.2165/11586090-000000000-00000.

Involving patients in research: considering good practice.

作者信息

Gooberman-Hill Rachael, Burston Amanda, Clark Emma, Johnson Emma, Nolan Sharon, Wells Victoria, Betts Lizzy

机构信息

Musculoskeletal Research Unit, School of Clinical Sciences, University of Bristol, UK.

出版信息

Musculoskeletal Care. 2013 Dec;11(4):187-90. doi: 10.1002/msc.1060.

DOI:10.1002/msc.1060
PMID:24311367
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3918577/
Abstract
摘要