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英国利用捐赠配子和胚胎组建家庭:代表英国不孕不育咨询协会和英国生育协会,与临床胚胎学家协会及皇家护理学院生育护理论坛合作制定的政策与实践建议

Family building using donated gametes and embryos in the UK: recommendations for policy and practice on behalf of the British Infertility Counselling Association and the British Fertility Society in collaboration with the Association of Clinical Embryologists and the Royal College of Nurses Fertility Nurses Forum.

作者信息

Wilde Ruth, McTavish Alison, Crawshaw Marilyn

机构信息

Complete Fertility Centre Southampton, Princess Anne Hospital , Southampton, Hampshire , UK.

出版信息

Hum Fertil (Camb). 2014 Mar;17(1):1-10. doi: 10.3109/14647273.2013.862041. Epub 2013 Dec 13.

DOI:10.3109/14647273.2013.862041
PMID:24329028
Abstract

The UK Department of Health's consultation on the future of the Human Fertilisation and Embryology Authority (HFEA) presented an opportunity to review current practice in relation to donor conception (DC) and make recommendations for improving services to those seeking fertility treatment, to families with donor conceived children and those of donors, and to those seeking later information. The year 2023 marks the start of post-2005 donor conceived adults having statutory access to identifying information about their donor(s); some adults with pre-2005 donors will have access sooner if the donor(s) re-registers as 'willing to be identified'. This paper examines current practice in UK licensed treatment centres in collecting and disseminating donor information and in supporting donors and prospective parents. Further, it considers current HFEA functions concerning DC including its responsibilities for the Register of Information and Donor Sibling Link and its approach to policy making, regulation and the release of information from these Registers to applicants. Proposals for how these functions could be carried out in the future are set out together with recommendations for national support and intermediary services. The key evidence available to support these recommendations is outlined.

摘要

英国卫生部就人类受精与胚胎学管理局(HFEA)的未来进行了咨询,这为审视当前与捐赠受孕(DC)相关的做法,并为改善向寻求生育治疗的人群、有捐赠受孕子女的家庭及其捐赠者以及寻求后续信息的人群提供服务提出建议提供了契机。2023年标志着2005年以后出生的由捐赠受孕的成年人开始依法有权获取关于其捐赠者的身份识别信息;如果2005年以前的捐赠者重新登记为“愿意被识别”,一些有2005年以前捐赠者的成年人将更早获得相关信息。本文审视了英国持牌治疗中心在收集和传播捐赠者信息以及支持捐赠者和准父母方面的现行做法。此外,还考虑了HFEA目前与捐赠受孕相关的职能,包括其对信息登记册和捐赠者同胞联系服务的责任,以及其制定政策、监管以及向申请人发布这些登记册信息的方式。阐述了未来如何履行这些职能的建议以及对国家支持和中介服务的建议。概述了支持这些建议的关键现有证据。

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Family building using donated gametes and embryos in the UK: recommendations for policy and practice on behalf of the British Infertility Counselling Association and the British Fertility Society in collaboration with the Association of Clinical Embryologists and the Royal College of Nurses Fertility Nurses Forum.英国利用捐赠配子和胚胎组建家庭:代表英国不孕不育咨询协会和英国生育协会,与临床胚胎学家协会及皇家护理学院生育护理论坛合作制定的政策与实践建议
Hum Fertil (Camb). 2014 Mar;17(1):1-10. doi: 10.3109/14647273.2013.862041. Epub 2013 Dec 13.
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Mapping Ethical, Legal, and Social Implications (ELSI) of gamete donation.绘制配子捐赠的伦理、法律和社会影响(ELSI)
J Assist Reprod Genet. 2024 Nov;41(11):2855-2875. doi: 10.1007/s10815-024-03229-z. Epub 2024 Aug 26.
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National survey of donor-conceived individuals who requested information about their sperm donor-experiences from 17 years of identity releases in Sweden.
对 17 年来从瑞典的身份信息发布中要求了解其精子捐赠者经历的供精所生孩子的全国性调查。
Hum Reprod. 2022 Mar 1;37(3):510-521. doi: 10.1093/humrep/deab275.
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Emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion.促进通过捐赠受孕而有血缘关系的人之间接触的新模型:初步分析与讨论
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