Blyth E, Hunt J
School of Human and Health Sciences, University of Huddersfield, UK.
Hum Reprod. 1998 Nov;13(11):3274-7. doi: 10.1093/humrep/13.11.3274.
Section 31 of the Human Fertilization and Embryology Act 1990 permits people born as a result of licensed treatments provided in the UK to seek certain information about their genetic origins held on the Human Fertilization and Embryology Authority (HFEA) Register of Information. The precise nature of such information is to be specified in Regulations that have yet to be determined by the Secretary of State. The Register comprises data submitted to the Authority by licensed centres on HFEA Donor Information Form (91) 4. This paper reports on a survey of views of licensed centres concerning the adequacy of this form and centres' experiences of gathering information from donors. The survey shows that centres' experiences vary considerably, and the authors argue that there is a case for the sharing of centres' experiences and dissemination of effective strategies. The paper further discusses the nature of information that might become available to individuals seeking information from the HFEA. While requests for non-identifying information concerning the donor cannot be made prior to 2010, any information made available then is inevitably dependent on current practice in centres. The authors conclude that current variability in practice does not best serve the interests of donor offspring who may seek information about their genetic origins.
1990年《人类受精与胚胎学法》第31条允许因在英国接受许可治疗而出生的人，获取人类受精与胚胎管理局（HFEA）信息登记册中保存的有关其基因起源的某些信息。此类信息的确切性质将在国务大臣尚未确定的法规中予以明确。该登记册包含许可中心按照HFEA捐赠者信息表（91）4提交给管理局的数据。本文报告了一项关于许可中心对该表格的充分性以及中心从捐赠者收集信息的经验的观点调查。调查显示，各中心的经验差异很大，作者认为有必要分享各中心的经验并传播有效策略。本文还进一步讨论了可能提供给从HFEA获取信息的个人的信息性质。虽然在2010年之前不能要求提供有关捐赠者的非识别信息，但届时提供的任何信息不可避免地取决于各中心目前的做法。作者得出结论，目前做法的差异并不能最好地服务于可能寻求有关其基因起源信息的捐赠者后代的利益。
