O'Connell Megan E, Crossley Margaret, Cammer Allison, Morgan Debra, Allingham Wendy, Cheavins Betty, Dalziel Donna, Lemire Maurice, Mitchell Sheri, Morgan Ernie
University of Saskatchewan, Canada.
Dementia (London). 2014 May;13(3):382-95. doi: 10.1177/1471301212474143. Epub 2013 Feb 4.
Atypical and early-onset dementias can be particularly problematic for family caregivers, and support groups aimed at memory loss and Alzheimer's disease are not always helpful. Unfortunately, little has been developed specifically for caregivers of individuals with atypical dementias such as the frontotemporal dementias. Compounding the lack of access to interventions targeted specifically at caregivers of individuals with atypical and early-onset dementias are the unique needs of rural caregivers. Due to the relative infrequency of these particular dementias and the large geographical distances between rural caregivers, technology-facilitation is required for any group-based intervention. This paper describes the development of a secure telehealth videoconferenced support group for rural spouses of individuals with atypical and early-onset dementias. In addition, we provide preliminary evidence of effectiveness and describe a template for future groups based on the key therapeutic aspects of this novel technology-facilitated intervention.
非典型性和早发性痴呆症对于家庭护理人员来说可能尤其棘手,而针对记忆丧失和阿尔茨海默病的支持小组并不总是有用。不幸的是,专门为患有非典型性痴呆症(如额颞叶痴呆症)患者的护理人员开发的资源很少。农村护理人员的独特需求使针对非典型性和早发性痴呆症患者护理人员的干预措施更加难以获得。由于这些特定痴呆症相对罕见,且农村护理人员之间地理距离较远,任何基于群体的干预都需要技术辅助。本文描述了一个为患有非典型性和早发性痴呆症患者的农村配偶建立的安全远程医疗视频会议支持小组的发展情况。此外,我们提供了有效性的初步证据,并基于这种新型技术辅助干预的关键治疗方面描述了未来小组的模板。