Group Health Research Institute, 1730 Minor Avenue, Suite 1600, Seattle, WA, 98101, USA,
J Cancer Surviv. 2014 Jun;8(2):229-38. doi: 10.1007/s11764-013-0335-1. Epub 2013 Dec 19.
The purpose of this paper is to describe patient perspectives on survivorship care 1 year after cancer diagnosis.
The study was conducted at an integrated healthcare delivery system in western Washington State. Participants were patients with breast, colorectal, and lung cancer who had enrolled in a randomized control trial (RCT) of oncology nurse navigation to improve early cancer care. Those alive and enrolled in the healthcare system 1 year after diagnosis were eligible for this analysis. Participants completed surveys by phone. Questions focused on receipt of treatment summaries and care plans; discussions with different providers; patient opinions on who does and should provide their care; and patient perspectives primary care providers' (PCP) knowledge and skills related to caring for cancer survivors
Of the 251 participants in the RCT, 230 (91.6%) responded to the 12-month phone survey and were included in this analysis; most (n = 183, 79.6%) had breast cancer. The majority (84.8%) considered their cancer specialist (e.g., medical, radiation, surgical or gynecological oncologist) to be their main provider for cancer follow-up and most (69.4%) had discussed follow-up care with that provider. Approximately half of patients were uncertain how well their PCP communicated with the oncologist and how knowledgeable s/he was in caring for cancer survivors.
One year after diagnosis, cancer survivors continue to view cancer specialists as their main providers and are uncertain about their PCP's skills and knowledge in managing their care. Our findings present an opportunity to help patients understand what their PCPs can and cannot provide in the way of cancer follow-up care.
Additional research on care coordination and delivery is necessary to help cancer survivors manage their care between primary care and specialty providers.
本文旨在描述癌症诊断 1 年后患者对生存护理的看法。
本研究在华盛顿州西部的一个综合医疗服务系统中进行。参与者是参加过肿瘤护士导航改善早期癌症护理的随机对照试验（RCT）的乳腺癌、结直肠癌和肺癌患者。那些在诊断后 1 年内仍然存活并参加该医疗系统的患者符合本分析的条件。参与者通过电话完成调查。问题集中在接受治疗总结和护理计划；与不同提供者的讨论；患者对谁以及应该为他们提供护理的意见；以及患者对初级保健提供者（PCP）与照顾癌症幸存者相关的知识和技能的看法。
在 RCT 中，251 名参与者中有 230 名（91.6%）对 12 个月的电话调查做出回应并被纳入本分析；大多数（n=183，79.6%）患有乳腺癌。大多数（84.8%）认为他们的癌症专科医生（如内科、放射、外科或妇科肿瘤医生）是癌症随访的主要提供者，大多数（69.4%）与该提供者讨论过随访护理。大约一半的患者不确定他们的 PCP 与肿瘤医生沟通的情况以及他/她在照顾癌症幸存者方面的知识。
在诊断后 1 年，癌症幸存者继续将癌症专科医生视为他们的主要提供者，并对他们的 PCP 管理其护理的技能和知识感到不确定。我们的研究结果为帮助患者了解他们的 PCP 在癌症随访护理方面可以提供哪些服务以及不能提供哪些服务提供了机会。
需要进一步研究护理协调和提供，以帮助癌症幸存者管理他们在初级保健和专科提供者之间的护理。
