Department of Population Medicine Harvard Medical School/Harvard Pilgrim Health Care Institute Department of Medicine Harvard Vanguard Medical Associates, Boston, MA 02215, USA.
J Cancer Surviv. 2013 Mar;7(1):55-62. doi: 10.1007/s11764-012-0244-8. Epub 2012 Dec 14.
Much progress has been made in cancer survivorship research, but there are still many unanswered questions that can and need to be addressed by collaborative research consortia.
Since 1999, the National Cancer Institute-funded HMO Cancer Research Network (CRN) has engaged in a wide variety of research focusing on cancer survivorship. With a focus on thematic topics in cancer survivorship, we describe how the CRN has contributed to research in cancer survivorship and the resources it offers for future collaborations.
We identified the following areas of cancer survivorship research: surveillance for and predictors of recurrences, health care delivery and care coordination, health care utilization and costs, psychosocial outcomes, cancer communication and decision making, late effects of cancer and its treatment, use of and adherence to adjuvant therapies, and lifestyle and behavioral interventions following cancer treatment.
With over a decade of experience using cancer data in community-based settings, the CRN investigators and their collaborators are poised to generate evidence in cancer survivorship research.
Collaborative research within these settings can improve the quality of care for cancer survivors within and beyond integrated health care delivery systems.
癌症生存者研究已经取得了很大进展,但仍有许多未解决的问题,可以而且需要通过合作研究联盟来解决。
自 1999 年以来,美国国立卫生研究院资助的 HMO 癌症研究网络(CRN)一直从事各种专注于癌症生存者的研究。我们重点关注癌症生存者的主题性课题,描述了 CRN 如何为癌症生存者的研究做出贡献,以及它为未来的合作提供了哪些资源。
我们确定了以下癌症生存者研究领域:复发的监测和预测因素、医疗服务的提供和协调、医疗保健的利用和成本、心理社会结局、癌症沟通和决策、癌症及其治疗的晚期影响、辅助治疗的应用和依从性,以及癌症治疗后的生活方式和行为干预。
CRN 的研究人员及其合作者在社区环境中使用癌症数据已有十多年的经验,他们已经准备好为癌症生存者的研究提供证据。
在这些环境中进行的合作研究可以改善综合医疗服务系统内和之外的癌症幸存者的护理质量。