Cheng Patricia, Gutierrez-Colina Ana M, Loiselle Kristin A, Strieper Margaret, Frias Patrick, Gooden Kevin, Blount Ronald L
Department of Psychiatry and Behavioral Sciences, Duke University Medical Center, Durham, NC, USA.
J Clin Psychol Med Settings. 2014 Mar;21(1):92-102. doi: 10.1007/s10880-013-9381-0.
Prior research evaluating health-related quality of life (HRQOL) among pediatric patients with internal cardiac devices has primarily focused on children with cardiac defibrillators, with scant attention devoted to pacemaker recipients. Social support has been conceptualized as a protective factor that partially accounts for differences in HRQOL. This study compares the HRQOL of children with pacemakers with that of healthy children, and examines associations between HRQOL and social support. Twenty-seven pediatric pacemaker recipients completed measures of HRQOL and social support. Their parents also completed measures of child HRQOL. High concordance was found for child and parent-proxy reports of child HRQOL. Children with pacemakers and their parents both reported relatively low child HRQOL when compared to published normative data for healthy children and parents of healthy children. Family and friends emerged as the sources of support positively associated with the greatest number of HRQOL domains. In conclusion, these findings suggest that pediatric pacemaker recipients experience lower levels of HRQOL compared to healthy peers, and that social support from those closest to the child is associated with their perceived HRQOL.
先前评估植入心脏内部装置的儿科患者健康相关生活质量（HRQOL）的研究主要集中在患有心脏除颤器的儿童身上，而对起搏器接受者的关注较少。社会支持被概念化为一种保护因素，部分解释了HRQOL的差异。本研究比较了有起搏器的儿童与健康儿童的HRQOL，并研究了HRQOL与社会支持之间的关联。27名儿科起搏器接受者完成了HRQOL和社会支持的测量。他们的父母也完成了儿童HRQOL的测量。发现儿童与父母代理报告的儿童HRQOL具有高度一致性。与健康儿童和健康儿童父母的已发表规范数据相比，有起搏器的儿童及其父母均报告儿童HRQOL相对较低。家人和朋友成为与最多HRQOL领域呈正相关的支持来源。总之，这些发现表明，与健康同龄人相比，儿科起搏器接受者的HRQOL水平较低，并且来自与孩子最亲近的人的社会支持与他们感知到的HRQOL相关。
