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拉丁裔乳腺癌幸存者的生存教育:通过教育赋予幸存者力量。

Survivorship education for Latina breast cancer survivors: Empowering Survivors through education.

作者信息

Juarez Gloria, Mayorga Lina, Hurria Arti, Ferrell Betty

机构信息

Nursing Research & Education, Department of Population Sciences, City of Hope, Duarte, CA.

Supportive Care Medicine, City of Hope, Duarte, CA.

出版信息

Psicooncologia (Pozuelo de Alarcon). 2013;10(1):57-68. doi: 10.5209/rev_PSIC.2013.v10.41947.

Abstract

OBJECTIVES

Nueva Luz is an English and Spanish quality of life (QOL) intervention developed to address the educational needs of Latina breast cancer survivors and provide strategies to assist in their transition into survivorship.

METHODS

A qualitative approach was used to evaluate the English and Spanish educational intervention (Nueva Luz). A purposive sample of eight Latina breast cancer survivors was selected from the group who received the intervention to participate in a digitally recorded interview. Data was analyzed using thematic analysis.

RESULTS

Findings provide evidence that the one-on-one tailored approach is a feasible and acceptable method of providing a bilingual psychosocial intervention. The provision of printed bilingual information along with the verbal instruction from a bilingual and culturally competent health care provider can be effective in helping Latina breast cancer survivor's transition successfully into survivorship, improve QOL and contribute to better patient outcomes.

CONCLUSIONS

The study informs our understanding of the cultural context in patient education content and delivery of psychosocial interventions. The findings may also have relevance for other ethnic minority cancer survivors.

摘要

目标

“新光”(Nueva Luz)是一项针对拉丁裔乳腺癌幸存者的教育需求而开发的英语和西班牙语生活质量干预措施,并提供策略以帮助她们过渡到癌症康复阶段。

方法

采用定性方法评估英语和西班牙语教育干预措施(“新光”)。从接受该干预措施的群体中选取了八名拉丁裔乳腺癌幸存者作为有目的的样本,参与数字录音访谈。使用主题分析法对数据进行分析。

结果

研究结果表明,一对一的量身定制方法是提供双语心理社会干预的一种可行且可接受的方法。由具备双语能力和文化素养的医疗保健提供者提供的印刷双语信息以及口头指导,可有效帮助拉丁裔乳腺癌幸存者成功过渡到癌症康复阶段,提高生活质量,并带来更好的患者治疗效果。

结论

该研究增进了我们对患者教育内容中的文化背景以及心理社会干预措施实施情况的理解。研究结果可能对其他少数民族癌症幸存者也具有参考价值。

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