a Psychosocial Oncology, McGill University Health Center - Montreal General Hospital , Montreal , Quebec , Canada.
J Psychosoc Oncol. 2014;32(1):94-111. doi: 10.1080/07347332.2013.856057.
Pain requiring treatment is experienced by many cancer patients at the end of life. Family caregivers are often directly implicated in pain management. This article highlights areas of psychosocial concern for family caregivers managing a family member's cancer pain at home as they engage in pain management processes. This article is based on the secondary analysis, guided by interpretive description, of data collected for a grounded theory study that explored the processes used by family caregivers to manage cancer patients' pain in the home. Interviews and field notes from 24 family caregiver interviews were examined to identify areas of family caregiver psychosocial distress. The analysis revealed that family caregivers experienced distress at different phases of the pain management process. Sources of distress for caregivers included feeling as though they were "in a prison" (overwhelmingly responsible), "lambs to slaughter" (unsupported), and "flying blind" (unprepared). In addition, family caregivers expressed distress when witnessing their loved one in pain and when pain crises invoked thoughts of death. In sum, family caregivers managing a loved one's cancer pain at home are at risk for psychosocial distress. This study identified four key sources of distress that can help health care professionals better understand the experiences of these family caregivers and tailor supportive interventions to meet their needs. Knowledge about sources of distress can help healthcare professionals understand the experiences of these family caregivers and tailor supportive interventions to meet their needs.
许多癌症终末期患者会经历需要治疗的疼痛。在癌症疼痛管理中，家属照护者通常会直接牵涉其中。本文重点关注家属照护者在居家管理癌症患者疼痛时的心理社会关切领域，这些照护者参与疼痛管理过程。本文基于扎根理论研究的二次分析，该研究探索了家属照护者在家中管理癌症患者疼痛所使用的过程。对 24 名家属照护者访谈的访谈和现场记录进行了检查，以确定家属照护者心理困扰的领域。分析显示，家属照护者在疼痛管理过程的不同阶段会感到困扰。照护者的困扰来源包括感觉自己“像在监狱里”（承担过多责任）、“任人宰割”（得不到支持）和“盲目飞行”（准备不足）。此外，当看到亲人疼痛和疼痛危机引发死亡想法时，家属照护者也会感到困扰。总之，在家中照顾癌症患者疼痛的家属照护者有心理困扰的风险。本研究确定了四个主要的困扰来源，可以帮助医疗保健专业人员更好地了解这些家属照护者的经历，并针对他们的需求定制支持性干预措施。对困扰来源的了解可以帮助医疗保健专业人员理解这些家属照护者的经历，并针对他们的需求定制支持性干预措施。
