Intellect Dev Disabil. 2013 Dec;51(6):482-95. doi: 10.1352/1934-9556-51.6.482.
Sibling relationships are some of the longest-lasting relationships people experience, providing ample opportunities to build connections across the life span. For siblings and people with intellectual and developmental disabilities (IDD), these connections take on an increased significance as their families age and parents can no longer provide care. This article presents findings from a qualitative study that addresses the question, "How do siblings support each other after parents no longer can provide care to the person with IDD?" Findings in this study suggest that siblings with and without disabilities experience reciprocity as a transitive exchange, which occurs through the creation of social capital in their families and community, and that nondisabled siblings mobilize their social capital to provide support to their sibling after parents pass away. Implications for future research as well as policy and practice are discussed.
兄弟姐妹关系是人们经历的最持久的关系之一,为跨越整个生命周期建立联系提供了充足的机会。对于兄弟姐妹和智障人士来说,随着他们的家庭年龄的增长,父母无法再提供照顾,这些联系变得更加重要。本文介绍了一项定性研究的结果,该研究探讨了“父母不再能够照顾智障人士后,兄弟姐妹之间如何相互支持?”这一问题。研究结果表明,有无残疾的兄弟姐妹都将互惠作为一种传递性交换来体验,这种交换通过在他们的家庭和社区中创造社会资本来实现,非残疾的兄弟姐妹在父母去世后调动他们的社会资本来为他们的兄弟姐妹提供支持。讨论了对未来研究以及政策和实践的影响。