Boston University Two Silber Way Boston, MA 02215 United States; Vanderbilt University, United States; University of Illinois at Urbana-Champaign, United States; University of Minnesota, United States.
Boston University Two Silber Way Boston, MA 02215 United States; Vanderbilt University, United States; University of Illinois at Urbana-Champaign, United States; University of Minnesota, United States.
Res Dev Disabil. 2020 Jan;96:103538. doi: 10.1016/j.ridd.2019.103538. Epub 2019 Nov 26.
Most siblings of individuals with intellectual and developmental disabilities (IDD) report positive sibling relationships. However, extant research often only examines the perspective of the nondisabled sibling; it is unclear whether siblings with IDD report close sibling relationships. Thus, the aim of this study was to understand adult sibling relationships from the perspectives of both siblings with and without IDD. Using dyadic interviews, we examined the perspectives of eight adult sibling dyads. The study was conducted in the United States. Data were analyzed using constant comparative analysis and cross-case analysis to identify themes within and across dyads. Overall, siblings with and without IDD reported enjoying spending time with one another. However, siblings with and without Down syndrome (versus autism spectrum disorder) reported more reciprocal sibling relationships, more frequent contact, and a greater range of shared activities. Implications for future research and practice are discussed.
大多数智障和发育障碍(IDD)患者的兄弟姐妹报告称,他们与兄弟姐妹的关系良好。然而,现有研究通常只考察非残疾兄弟姐妹的观点;尚不清楚 IDD 患者的兄弟姐妹是否也报告与兄弟姐妹关系密切。因此,本研究旨在从 IDD 患者和非 IDD 患者兄弟姐妹双方的角度来理解成年兄弟姐妹关系。通过对偶访谈,我们考察了 8 对成年兄弟姐妹对的观点。该研究在美国进行。使用恒比分析和跨案例分析对数据进行分析,以识别出对子内和对子间的主题。总的来说,有 IDD 和没有 IDD 的兄弟姐妹都表示喜欢彼此相处。然而,患有唐氏综合征(而非自闭症谱系障碍)的兄弟姐妹比自闭症谱系障碍患者的兄弟姐妹报告称,他们的关系更互惠,联系更频繁,共同活动的范围也更广。讨论了对未来研究和实践的启示。