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与多发性硬化症患者参与水中健身项目相关的障碍与促进因素:一项试点研究。

Barriers and facilitators related to participation in aquafitness programs for people with multiple sclerosis: a pilot study.

作者信息

Brown Cara, Kitchen Kaitlyn, Nicoll Kaley

机构信息

Department of Occupational Therapy, School of Medical Rehabilitation, University of Manitoba, Winnipeg, Canada. Ms. Kitchen now works for Correctional Services Canada in Winnipeg, Manitoba, Canada. Ms. Nicoll is now with the Assiniboine Regional Health Authority in Manitoba, Canada.

出版信息

Int J MS Care. 2012 Fall;14(3):132-41. doi: 10.7224/1537-2073-14.3.132.

Abstract

Exercise and leisure activities provide physical and psychosocial benefits to people with multiple sclerosis (MS) and can enhance their quality of life. In Winnipeg, Manitoba, Canada, people with MS have reported barriers to their participation in local MS-specific aquafitness (AF) programs. Therefore, a formal exploration of the accessibility of local AF programs for people with MS was undertaken. The purpose of this phenomenological study was to identify factors that facilitate or impede participation in AF programs by individuals with MS living in Winnipeg. Qualitative data were collected from a total of eight participants through one focus group (n = 7) and one in-depth interview (n = 1). The sample consisted of individuals with MS who were currently participating in AF programming as well as those who were not. Data were audio-recorded and transcribed verbatim, and thematic analysis was completed. Seven themes emerged regarding factors affecting participation in local AF programs. Barriers to participation included inadequate transportation, lack of one-on-one support, environmental inaccessibility, and fears associated with participation in the programs. Facilitators of participation included a knowledgeable instructor and experiencing physical and psychosocial benefits from the program. Information from this study was used locally to advocate for people with MS in order to increase participation in local AF programming.

摘要

运动和休闲活动能为多发性硬化症(MS)患者带来身体和心理社会方面的益处,并能提高他们的生活质量。在加拿大曼尼托巴省温尼伯市,MS患者报告称在参与当地特定于MS的水中健身(AF)项目时存在障碍。因此,对当地AF项目对MS患者的可及性进行了正式探究。这项现象学研究的目的是确定居住在温尼伯市的MS患者参与AF项目的促进因素或阻碍因素。通过一个焦点小组(n = 7)和一次深度访谈(n = 1),从总共八名参与者那里收集了定性数据。样本包括目前正在参与AF项目的MS患者以及未参与的患者。数据进行了录音并逐字转录,然后完成了主题分析。出现了七个关于影响参与当地AF项目的因素的主题。参与的障碍包括交通不便、缺乏一对一支持、环境不可达以及与参与项目相关的恐惧。参与的促进因素包括知识渊博的教练以及从项目中获得身体和心理社会方面的益处。这项研究的信息在当地被用于为MS患者争取权益,以增加他们对当地AF项目的参与度。

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