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针对多发性硬化症患者夫妻的关系强化项目的有效性。

Effectiveness of a relationship enrichment program for couples living with multiple sclerosis.

作者信息

Tompkins Sara Anne, Roeder Jessica Ann, Thomas Jenifer J, Koch Kimberly K

机构信息

Madipen Consulting, LLC, Fort Collins, CO, USA (SAT); National Multiple Sclerosis Society, Denver, CO, USA (JAR, KKK); and Fay W. Whitney School of Nursing, University of Wyoming, Laramie, WY, USA (JJT).

出版信息

Int J MS Care. 2013 Spring;15(1):27-34. doi: 10.7224/1537-2073.2012-002.

Abstract

Living with a chronic illness such as multiple sclerosis (MS) has significant psychosocial ramifications. In particular, the patient's relationship with a spouse or significant other is often negatively affected. Programs are needed to address the psychosocial challenges of the illness and help improve outcomes for both the person with MS and his or her romantic support partner. Relationship Matters (RM) is a relationship enrichment program that integrates information and resources of the National Multiple Sclerosis Society with empirically based marriage education. The purpose of this study was to examine the effectiveness of the RM program in increasing relationship satisfaction and aspects of health-related quality of life in couples living with MS over a 3-month follow-up period. Couples were given 8 hours of programming via in-person workshops disseminated across the country or teleconferences. A control group consisting of members of MS couples who did not receive the intervention was used for comparison. The results indicate that RM significantly improved relationship satisfaction over time compared with no intervention (P < .05). Additional findings include significant improvements in mental health-related quality of life as well as reported improvements in communication, conflict resolution, and ability to handle MS-specific relationship issues. Overall, these findings show that RM results in improved couple functioning and additional psychological health benefits for individuals with MS and their romantic support partners.

摘要

患有诸如多发性硬化症(MS)这样的慢性疾病会产生重大的心理社会影响。特别是,患者与配偶或重要他人的关系常常受到负面影响。需要一些项目来应对该疾病带来的心理社会挑战,并帮助改善多发性硬化症患者及其浪漫伴侣的结局。关系重要性(RM)项目是一个关系强化项目,它将美国国家多发性硬化症协会的信息和资源与基于实证的婚姻教育相结合。本研究的目的是在3个月的随访期内,检验RM项目在提高患有MS的夫妻的关系满意度以及与健康相关的生活质量方面的有效性。通过在全国范围内举办的面对面研讨会或电话会议,为夫妻提供8小时的课程。使用一个由未接受干预的MS夫妻成员组成的对照组进行比较。结果表明,与未进行干预相比,随着时间的推移,RM显著提高了关系满意度(P < 0.05)。其他研究结果包括与心理健康相关的生活质量有显著改善,以及报告显示在沟通、解决冲突和处理与MS相关的关系问题的能力方面有所提高。总体而言,这些研究结果表明,RM能改善夫妻关系功能,并为患有MS的个体及其浪漫伴侣带来额外的心理健康益处。

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