Layton Natasha A
Deakin University, Burwood, Victoria, Australia.
Aust Occup Ther J. 2014 Apr;61(2):49-57. doi: 10.1111/1440-1630.12107. Epub 2014 Feb 12.
BACKGROUND/AIM: In this era of evidence-based practice, Australian occupational therapists largely accept scientific perspectives of the quality of evidence and 'what makes a strong study'. Yet unequal power relationships are usual between funders who set the research agenda, researchers and people who are the subjects of research. Emerging policy now mandates partnerships with consumers in any health and research projects about them. Are we person-centred in our research practices? What difference would increased consumer direction make to our research methods, scope and outcomes? This lecture describes some of the benefits and challenges of collaborative or inclusive research partnerships with consumers and outlines where this may take occupational therapy in future.
The disability community's calls for inclusive research will be contrasted with mainstream research approaches and with occupational therapy's commitment to person-centredness. An example of inclusive research undertaken by the author and colleagues with disabilities which posed the question: 'What difference does assistive technology make to life for people living with impairment?' will be presented.
RESULTS/IMPLICATIONS: Collaborative research is best conceptualised as a mutually productive journey, with many factors influencing how fully inclusive research principles can be realised. The possibilities and complexities of conducting research which has inclusive credentials are outlined.
Inclusive research principles provide a means to enact person-centredness in research as well as practice. Following these principles challenges occupational therapy practitioners and researchers to address nexus issues: that is, intersections between and beyond research, policy and practice.
背景/目的：在这个循证实践的时代，澳大利亚职业治疗师在很大程度上接受了关于证据质量和“怎样才算一项有力研究”的科学观点。然而，在设定研究议程的资助者、研究人员以及研究对象之间，权力关系通常并不平等。现在新出台的政策要求在任何涉及消费者的健康和研究项目中与他们建立合作关系。我们在研究实践中是以患者为中心吗？消费者导向的增强会对我们的研究方法、范围和结果产生怎样的影响？本次讲座描述了与消费者建立合作性或包容性研究伙伴关系的一些益处和挑战，并概述了这在未来可能会将职业治疗带向何方。
将残疾群体对包容性研究的呼吁与主流研究方法以及职业治疗对以患者为中心的承诺进行对比。将展示作者及其残疾同事所进行的一项包容性研究的实例，该研究提出了这样一个问题：“辅助技术对残障人士的生活有何影响？”
结果/启示：合作性研究最好被理解为一段互利的旅程，有许多因素会影响包容性研究原则能够在多大程度上得以实现。概述了开展具有包容性资质的研究的可能性和复杂性。
包容性研究原则为在研究及实践中践行以患者为中心提供了一种方式。遵循这些原则对职业治疗从业者和研究人员提出了挑战，要求他们解决关联问题，即研究、政策和实践之间及之外的交叉点问题。
