Department of Health and Care Sciences, Faculty of Health Sciences, UiT The Arctic University of Norway, Tromsø, Norway.
College of Medicine and Health, PenCLAHRC Patient and Public Involvement Team, University of Exeter Medical School, Exeter, UK.
Health Expect. 2023 Dec;26(6):2525-2531. doi: 10.1111/hex.13853. Epub 2023 Aug 21.
Patient and public involvement (PPI) is increasingly considered an integral part of health research, and the focus has shifted from why we need PPI to how users can be involved in a meaningful way. The rationale for investigating experiences with PPI from the perspective of occupational therapy (OT)-trained researchers' originates in the interrelationship between the inclusive approach to knowledge production, and participation and inclusion as core tenets of OT. The aim of this study was to explore PPI in health research from the perspective of OT-trained researchers.
Semi-structured individual interviews were conducted online with nine Norwegian researchers. The interviews were analysed using reflexive thematic analysis.
Professional background and clinical experience from person-centred OT formed the foundation for how these researchers approached and facilitated PPI in their research. Valuing experiential knowledge and facilitating PPI to be meaningful for public collaborators were highlighted as essential for PPI to have an impact. The need to balance mutual expectations, requirements for research, and what might be possible to achieve within a research study were found to be vital.
Collaborative clinical experience constituted a sound foundation for implementing PPI in research. The occupational perspective underlines the importance of acknowledging experiential knowledge as essential to facilitating meaningful PPI. Challenges related to requirements for research and culture for implementing PPI were addressed by clarifying roles and expectations.
Three public collaborators were involved in developing the aims, the interview guide, and the data analysis. They all had previous experience being involved in research.
患者和公众参与（PPI）越来越被认为是健康研究的一个组成部分，重点已经从我们为什么需要 PPI 转移到如何让用户以有意义的方式参与。从职业治疗（OT）培训研究人员的角度调查 PPI 经验的基本原理源于知识生产的包容性方法、参与和包容作为 OT 的核心原则之间的相互关系。本研究的目的是从 OT 培训研究人员的角度探讨健康研究中的 PPI。
对 9 名挪威研究人员进行了在线半结构化个人访谈。使用反思性主题分析对访谈进行分析。
以以人为中心的 OT 的专业背景和临床经验为基础，这些研究人员在研究中接近和促进 PPI 的方式。重视经验知识并促进 PPI 对公众合作者有意义被强调为 PPI 产生影响的必要条件。发现需要平衡相互期望、研究要求以及在研究中可能实现的目标，这一点至关重要。
协作的临床经验为在研究中实施 PPI 奠定了坚实的基础。职业视角强调承认经验知识对于促进有意义的 PPI 的重要性。通过明确角色和期望来解决与研究要求和实施 PPI 文化相关的挑战。
三位公众合作者参与制定了研究的目标、访谈指南和数据分析。他们都有之前参与研究的经验。
