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[脊髓损伤患者的照顾者:照顾者负担]

[Caregivers of individuals with spinal cord injury: caregiver burden].

作者信息

Nogueira Paula Cristina, Rabeh Soraia Assad Nasbine, Caliri Maria Helena Larcher, Haas Vanderlei José

机构信息

Enfermeira. Pós-Doutoranda do Departamento de Enfermagem Geral e Especializada de Escola de Enfermagem de Ribeirão Preto da Universidade de São Paulo. Bolsista CNPq. Ribeirão Preto, SP, Brasil.

Enfermeira. Professora Doutora do Departamento de Enfermagem Geral e Especializada de Escola de Enfermagem de Ribeirão Preto da Universidade de São Paulo. Ribeirão Preto, SP, Brasil.

出版信息

Rev Esc Enferm USP. 2013 Jun;47(3):607-14. doi: 10.1590/s0080-623420130000300012.

DOI:10.1590/s0080-623420130000300012
PMID:24601136
Abstract

A sectional study that had as its objectives to assess caregiver burden of for caregivers of individuals with Traumatic Spinal Cord Injury (TSCI) and its association with sociodemographic variables (age and sex), health status (self-reported illnesses) and caregiver characteristics (care time in years and daily hours of care). Data were collected by consultation of patient files and individual interviews at home using the instrument, Caregiver Burden Scale (CBScale). The results showed that most burden occurred in the domains: environment, disappointment and general strain. Presenting health problem (for all domains of the CBScale) and spending more hours per day in care (in the domain disappointment) represented the variables associated with burden. Studies of a more confirmatory nature than exploratory between the variables studied can be used to measure the burden obtained in this population of caregivers of individuals with TSCI.

摘要

一项横断面研究,旨在评估创伤性脊髓损伤(TSCI)患者照料者的照料负担及其与社会人口统计学变量(年龄和性别)、健康状况(自我报告的疾病)和照料者特征(照料年限和每日照料时长)之间的关联。通过查阅患者档案以及使用照料者负担量表(CBScale)在家中进行个人访谈来收集数据。结果显示,大多数负担出现在环境、失望和总体压力等领域。存在健康问题(在CBScale的所有领域)以及每天花费更多时间照料(在失望领域)是与负担相关的变量。与探索性研究相比,具有更多验证性质的研究可用于衡量该TSCI患者照料者群体所承受的负担。

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