Department of Occupational Therapy, School of Rehabilitation Sciences, Iran University of Medical Sciences, Tehran, Iran.
School of rehabilitation sciences, Ottawa university, Ottawa, Canada.
Occup Ther Int. 2021 Oct 12;2021:9921710. doi: 10.1155/2021/9921710. eCollection 2021.
Often people with spinal cord injury (SCI) require help from their caregivers to carry out activities of daily living. Such assistance may affect caregiver quality of life (QoL). This study investigates the QoL and its associated risk factors among caregivers of people with SCI to find possible ways to increase their QoL. . A convenience sample of 135 Iranian caregivers of people with SCI participated in a cross-sectional study from the Brain and Spinal Injury Repair Research Center of Tehran (BASIR), Iran, from June 2018 to October 2019. The World Health Organization's Quality of Life Questionnaire (WHOQoL-BREF), the Beck Depression Inventory-II (BDI-II), the Caregiver Burden Scale (CBS), and a demographic questionnaire were administered. Hierarchical multiple linear regression analysis was then applied to identify risk factors associated with caregiver QoL.
Moderate to highly significant negative correlations were observed between all domains of the WHOQoL scale and subscales of the CBS and the BDI-II. After controlling for demographic and clinical variables, depression, burden, and level of injury were found to predict caregiver QoL significantly. Furthermore, QoL was lower in caregivers of people with quadriplegia than paraplegia ( < 0.05).
The level of injury, self-perceived caregiver burden, and depression are associated with QoL for the caregivers of people with SCI. A holistic approach incorporating caregiver training, psychological interventions, and adequate support may enable better QoL for these caregivers.
脊髓损伤（SCI）患者通常需要护理人员的帮助来进行日常生活活动。这种帮助可能会影响护理人员的生活质量（QoL）。本研究旨在调查 SCI 患者护理人员的 QoL 及其相关的危险因素，以寻找提高他们 QoL 的可能方法。 本研究采用便利抽样法，于 2018 年 6 月至 2019 年 10 月在伊朗德黑兰脑与脊髓损伤修复研究中心（BASIR）选取了 135 名 SCI 患者的伊朗护理人员作为研究对象。采用世界卫生组织生活质量问卷（WHOQoL-BREF）、贝克抑郁量表第二版（BDI-II）、照顾者负担量表（CBS）和人口统计学问卷对研究对象进行调查。然后采用分层多元线性回归分析来识别与护理人员 QoL 相关的危险因素。 结果：WHOQoL 量表各领域与 CBS 和 BDI-II 的各子量表之间存在中度至高度显著负相关。在控制了人口统计学和临床变量后，抑郁、负担和损伤程度被发现是预测护理人员 QoL 的显著因素。此外，四肢瘫痪患者的护理人员的 QoL 明显低于截瘫患者（<0.05）。 结论：损伤程度、自我感知的护理人员负担和抑郁与 SCI 患者护理人员的 QoL 相关。综合采用护理人员培训、心理干预和充分支持等方法，可能会提高这些护理人员的 QoL。
