Gåfvels Catharina, Hägerström Margareta, Nordmark Birgitta, Wändell Per
Department of Social Work, Karolinska University Hospital, Solna, 171 76 Stockholm Sweden ; Centre for Family Medicine, Karolinska Institutet, Alfred Nobels allé 12, Huddinge, 141 83 Sweden.
Department of Social Work, Karolinska University Hospital, Solna, 171 76 Stockholm Sweden ; Department of Rheumatology, Karolinska University Hospital, Solna, 171 76 Stockholm Sweden.
Springerplus. 2014 Feb 28;3:118. doi: 10.1186/2193-1801-3-118. eCollection 2014.
We aimed at analyzing important predictive factors for experienced negative emotional and social effects of rheumatoid arthritis (RA) two years after diagnosis in patients aged 18-65 years. The first group included 41 participants, who had psychosocial problems (PSP) already at diagnosis, and who received an intervention by a medical social worker to improve coping capacity and social situation. The second group included 54 patients (NPSP) without such problems at diagnosis. All completed a questionnaire mapping their social situation, the Hospital Anxiety and Depression Scale (HADS), the Sense of Coherence Scale (SOC) and the General Coping Questionnaire (GCQ) at diagnosis and after 24 months. The most pronounced predictive factor for a strong impact of the disease was high scores on HADS depression scale. After 24 months, PSP participants had a more strained life situation, with higher scores on anxiety and depression and lower on SOC, in comparison with NPSP. NPSP participants improved their coping strategies regarding self-trust, cognitive revaluation, protest and intrusion, but deteriorated regarding problem focusing and social trust. PSP patients kept their initial coping strategies, except for intrusion decreasing over time, and seemed to have a more rigid coping pattern. However, the experienced negative impact of the disease increased over time in both groups despite improvement in sickness related data. Mostly influenced areas were economy, leisure time activities and social life. We conclude that psychosocial consequences of RA are more connected to emotional and social vulnerability than are RA-related clinical factors.
我们旨在分析18至65岁类风湿关节炎(RA)患者确诊两年后出现负面情绪和社会影响的重要预测因素。第一组包括41名参与者,他们在确诊时就存在心理社会问题(PSP),并接受了医务社会工作者的干预以提高应对能力和改善社会状况。第二组包括54名确诊时无此类问题的患者(NPSP)。所有患者在确诊时及24个月后均完成了一份调查问卷,内容涉及他们的社会状况、医院焦虑抑郁量表(HADS)、连贯感量表(SOC)和一般应对问卷(GCQ)。疾病产生强烈影响的最显著预测因素是HADS抑郁量表得分高。24个月后,与NPSP相比,PSP参与者的生活状况更为紧张,焦虑和抑郁得分更高,SOC得分更低。NPSP参与者在自我信任、认知重新评价、抗议和侵扰方面改善了应对策略,但在问题聚焦和社会信任方面有所恶化。PSP患者保持了他们最初的应对策略,除了侵扰随着时间推移有所减少,并且似乎有更僵化的应对模式。然而,尽管疾病相关数据有所改善,但两组患者中疾病带来的负面影响随着时间的推移都有所增加。受影响最大的领域是经济、休闲活动和社会生活。我们得出结论,与RA相关的临床因素相比,RA的心理社会后果与情绪和社会脆弱性的联系更为紧密。