Hong Sung Sil, Park Ho Ran, Kim Kwang Sung, Choi Sun Hee
Graduate School, The Catholic University of Korea, Seoul, Korea.
College of Nursing, The Catholic University of Korea, Seoul, Korea.
J Korean Acad Nurs. 2014 Feb;44(1):55-63. doi: 10.4040/jkan.2014.44.1.55.
This study was conducted to examine the late effects, social adjustment, and quality of life in adolescents who had been completely treated for childhood leukemia and their parents.
Participants consisted of 41 pairs of adolescent survivors (13-18 years) and their parents. Parents checked for their child's physical late effects. The Korean Version of Post-Traumatic Symptoms for psychological late effects, social functioning questionnaire for social adjustment and the PedsQL 4.0 Generic Core Scales for quality of life were completed by adolescents and parents. Data were analyzed using SPSS.
Twenty out of 41 adolescents had one or more physical late effects. Adolescents showed more serious psychological late effect than parents. Five children and seven parents had above cut-off scores and they were considered the high risk group for posttraumatic symptoms. Parent-reported scores were significantly higher than child-reported scores in terms of social adjustment and emotional functioning of quality of life. Low school functioning in adolescents was associated with physical late effects.
The results indicate that long-term and systematic management for childhood leukemia survivors affect positive social adjustment and can further improve quality of life.
本研究旨在调查童年期白血病已完全治愈的青少年及其父母的远期影响、社会适应情况和生活质量。
研究对象包括41对青少年幸存者（13 - 18岁）及其父母。父母检查孩子的身体远期影响。青少年和父母完成用于评估心理远期影响的韩国版创伤后症状量表、用于评估社会适应情况的社会功能问卷以及用于评估生活质量的儿童生活质量量表4.0通用核心量表。数据采用SPSS进行分析。
41名青少年中有20人存在一种或多种身体远期影响。青少年表现出比父母更严重的心理远期影响。5名儿童和7名父母的得分高于临界值，他们被视为创伤后症状的高危人群。在生活质量的社会适应和情感功能方面，父母报告的得分显著高于儿童报告的得分。青少年的学校功能低下与身体远期影响有关。
结果表明，对童年期白血病幸存者进行长期、系统的管理对积极的社会适应有影响，并可进一步提高生活质量。
