Aarts Johanna Wilhelmina Maria, Vennik Femke, Nelen Willianne L D M, van der Eijk Martijn, Bloem Bastiaan R, Faber Marjan J, Kremer Jan A M
Department of Obstetrics and Gynaecology, Radboud University Nijmegen Medical Centre, Nijmegen, the Netherlands.
Institute of Health Policy & Management (iBMG), Erasmus University Rotterdam, DR Rotterdam, the Netherlands.
Health Expect. 2015 Dec;18(6):2091-106. doi: 10.1111/hex.12177. Epub 2014 Mar 19.
Fragmentation of care, complexity of diseases and the need to involve patients actively in their individual health care led to the development of the personal health community (PHC). In a PHC, patients can -regardless of the nature of their condition- invite all professionals that are involved in their health care process. Once gathered, the patient and health care team can exchange information about the patient's health and communicate through several functionalities, in a secured environment.
Exploring the use, first experiences and potential consequences of using PHCs in health care.
Qualitative phenomenological study.
Eighteen respondents, consisting of women experiencing infertility (n = 5), persons with Parkinson's disease (n = 6), a gynaecologist, a fertility doctor, a fertility nurse, three Parkinson's specialist nurses and a neurologist.
First experiences with PHCs showed that patients use their PHC differently, dependending on their condition and people involved. Various (potential) advantages for future health care were mentioned relating to both organizational aspects of care (e.g. continuity of care) and the human side of care (e.g. personal care). Patient involvement in care was facilitated. Disadvantages were the amount of work that it took and technological issues.
Using PHCs leads to promising improvements in both the organization of care and care experience, according to the participants in this study. They indicate that patients with different diseases and in different circumstances can benefit from these improvements. The PHC seem to be an online tool that can be applied in a personalized way. When (technically) well facilitated, it could stimulate active involvement of patients in their own health and health care. It warrants further research to study its effect on concrete health outcomes.
医疗服务碎片化、疾病复杂性以及患者积极参与个人医疗保健的需求促使了个人健康社区（PHC）的发展。在个人健康社区中，患者无论病情如何，都可以邀请所有参与其医疗保健过程的专业人员。一旦聚集在一起，患者和医疗团队可以在安全的环境中，就患者的健康状况交换信息，并通过多种功能进行沟通。
探索在医疗保健中使用个人健康社区的情况、首次体验及其潜在影响。
定性现象学研究。
18名受访者，包括不孕女性（n = 5）、帕金森病患者（n = 6）、一名妇科医生、一名生育医生、一名生育护士、三名帕金森病专科护士和一名神经科医生。
对个人健康社区的首次体验表明，患者根据自身病情和涉及人员的不同，对个人健康社区的使用方式也不同。提到了未来医疗保健在护理组织方面（如护理连续性）和护理人文方面（如个性化护理）的各种（潜在）优势。患者参与护理得到了促进。缺点是所需的工作量和技术问题。
根据本研究的参与者，使用个人健康社区有望在护理组织和护理体验方面带来改善。他们指出，患有不同疾病和处于不同情况的患者都可以从这些改善中受益。个人健康社区似乎是一种可以个性化应用的在线工具。如果（在技术上）得到良好的支持，它可以促进患者积极参与自身的健康和医疗保健。有必要进一步研究其对具体健康结果的影响。
