Morley David, Dummett Sarah, Kelly Laura, Dawson Jill, Jenkinson Crispin
Nuffield Department of Population Health, University of Oxford, Oxford, UK.
J Parkinsons Dis. 2014;4(3):467-72. doi: 10.3233/JPD-140358.
The PDQ-39 is the most thoroughly validated and widely used self-report instrument for the assessment of health-related quality of life in people with Parkinson's (PwP). Given the breadth of its use and increasing emphasis on electronic data capture, there may be significant benefit in validating an electronic version of the PDQ-39.
Firstly, to migrate the paper-based version of the PDQ-39 to a computer based platform and assess its usability and acceptability to respondents. Secondly, to investigate the impact of implementing non-response options on response rates and data completeness.
Six PwP participated in cognitive interviews in order to assess the usability and acceptability of the electronic version of the PDQ-39, the ePDQ. This was followed by an online survey of 129 PwP, randomly assigned to one of two groups; one required to provide a response to every item and one with the option to skip any item they did not wish to answer.
Cognitive interviews indicated that the ePDQ is acceptable to PwP, with positive feedback regarding layout, features and functionality. 125 PwP fully completed the ePDQ. Following randomization 60 participants completed the forced response ePDQ and 65 completed the non-forced version. Response rates of 98.4% were achieved for the forced response ePDQ and 95.6% for the non-forced. Missing value analyses calculated levels of missing data at below 5% in the non-forced sample.
The ePDQ is user-friendly and acceptable to respondents. Additionally, there appears little difference when implementing non-response options on response rates and data completeness.
帕金森病患者报告结局量表39项（PDQ - 39）是评估帕金森病患者健康相关生活质量时，经过最全面验证且使用最广泛的自评工具。鉴于其广泛的应用以及对电子数据采集的日益重视，验证PDQ - 39的电子版可能会带来显著益处。
首先，将纸质版PDQ - 39迁移至基于计算机的平台，并评估其对受访者的可用性和可接受性。其次，调查设置无应答选项对回复率和数据完整性的影响。
6名帕金森病患者参与了认知访谈，以评估PDQ - 39电子版（ePDQ）的可用性和可接受性。随后，对129名帕金森病患者进行了在线调查，这些患者被随机分配到两组中的一组；一组被要求对每个项目都做出回答，另一组可以选择跳过任何他们不想回答的项目。
认知访谈表明，帕金森病患者对ePDQ是可接受的，对其布局、功能和特性给予了积极反馈。125名帕金森病患者完整地完成了ePDQ。随机分组后，60名参与者完成了强制回答的ePDQ，65名完成了非强制版本。强制回答的ePDQ回复率为98.4%，非强制版本为95.6%。缺失值分析计算出非强制样本中的数据缺失水平低于5%。
ePDQ对用户友好且为受访者所接受。此外，设置无应答选项对回复率和数据完整性似乎影响不大。
