Yadav Satya Prakash, Rastogi Neha, Kharya Gaurav, Misra Ruchira, Ramzan Mohammed, Katewa Satyendra, Dua Vikas, Bhat Sunil, Kellie Stewart J, Howard Scott C
1Pediatric Hematology and Bone Marrow Transplant Unit, Fortis Memorial Research Institute, Gurgaon, India.
Pediatr Hematol Oncol. 2014 Apr;31(3):217-24. doi: 10.3109/08880018.2014.893596.
The survival of children with cancer in India is inferior to that of children in high-income countries. The Indian Pediatric Hematology Oncology Group (IPHOG) held a series of online meetings via www.Cure4kids.org to identify barriers to cure and develop strategies to improve outcomes. Five major hurdles were identified: delayed diagnosis, abandonment, sepsis, lack of co-operative groups, and relapse. Development of regional networks like IPHOG has allowed rapid identification of local causes of treatment failure for children with cancer in India and identification of strategies likely to improve care and outcomes in the participating centers. Next steps will include interventions to raise community awareness of childhood cancer, promote early diagnosis and referral, and reduce abandonment and toxic death at each center. Starting of fellowship programs in pediatric hemato-oncology, short training programs for pediatricians, publishing outcome data, formation of parent and patient support groups, choosing the right and effective treatment protocol, and setting up of bone marrow transplant services are some of the effective steps taken in the last decade, which needs to be supported further.
印度癌症患儿的生存率低于高收入国家的儿童。印度儿科血液学肿瘤学组（IPHOG）通过www.Cure4kids.org召开了一系列在线会议，以确定治愈的障碍并制定改善治疗结果的策略。确定了五个主要障碍：诊断延迟、被遗弃、败血症、缺乏合作组以及复发。像IPHOG这样的区域网络的发展使得能够迅速确定印度癌症患儿治疗失败的当地原因，并确定可能改善参与中心护理和治疗结果的策略。接下来的步骤将包括开展提高社区对儿童癌症认识的干预措施、促进早期诊断和转诊，以及减少各中心的遗弃现象和中毒死亡情况。在过去十年中采取的一些有效措施包括启动儿科血液学肿瘤学进修项目、为儿科医生开展短期培训项目、公布治疗结果数据、组建家长和患者支持小组、选择正确有效的治疗方案以及建立骨髓移植服务，这些措施需要进一步得到支持。
