Intellect Dev Disabil. 2014 Apr;52(2):112-23. doi: 10.1352/1934-9556-52.2.112.
Participant recruitment is one of the most significant challenges in research on intellectual disability (ID). One potential solution is to develop a participant contact registry, which allows the researcher to contact participants directly rather than recruiting through multiple schools or service agencies. The authors describe the development of one such registry and results of a survey of registry families. Results suggest that families joined the registry to help others, they hope research in the ID field improves the daily lives of individuals with ID and their families, and they find research participation to be a positive experience. However, logistic concerns can be an important barrier to their research participation, and they would like more information about the research study both before and after participating.
参与者招募是智力障碍（ID）研究中最具挑战性的问题之一。一种潜在的解决方案是开发参与者联系注册表，允许研究人员直接联系参与者，而不是通过多所学校或服务机构进行招募。作者描述了这样一个注册表的开发以及对注册表家庭的调查结果。结果表明，家庭加入注册表是为了帮助他人，他们希望 ID 领域的研究能改善 ID 患者及其家庭的日常生活，他们认为参与研究是一种积极的体验。然而，后勤方面的问题可能是他们参与研究的一个重要障碍，他们希望在参与研究之前和之后都能获得更多关于研究的信息。
