Intellectual Disability Medicine, Erasmus Medical Center Rotterdam, Department of General Practice, Rotterdam, The Netherlands.
Res Dev Disabil. 2011 May-Jun;32(3):1097-106. doi: 10.1016/j.ridd.2011.01.018. Epub 2011 Feb 4.
Problems encountered in epidemiologic health research in older adults with intellectual disabilities (ID) are how to recruit a large-scale sample of participants and how to measure a range of health variables in such a group. This cross-sectional study into healthy ageing started with founding a consort of three large care providers with a total client population of 2322 clients of 50 years and over, and two academic institutes. This consort made formal agreements about a research infrastructure and research themes: (1) physical activity and fitness, (2) nutrition and nutritional state, and (3) mood and anxiety. Subsequently, preparation was started by carefully reviewing and selecting instruments to measure a wide set of health variables to answer the research questions. Specific demands of these instruments were that they could be executed efficiently and accurately on-site in a large sample of participants and that the burden of these measurements for participants as well as their caregivers was as minimal as possible. Then, preparation was continued by designing and executing a thorough communication plan for clients, legal representatives and staff of the care providers, preceding the informed consent procedure. In this plan, which had a top-down structure, specific attention was given to personally informing and motivating of key stakeholders: the professional care givers. This preparation led to a recruitment of 1050 participants (45.2%) and to high participation rates in key parts of the assessment. A detailed description is provided about the recruitment and organization and the selected instruments.
在智力障碍（ID）老年人的流行病学健康研究中遇到的问题是如何招募大规模的参与者样本，以及如何在这样的群体中测量一系列健康变量。这项关于健康老龄化的横断面研究始于成立一个由三家大型护理机构组成的联盟，这些机构的总客户人群为 2322 名 50 岁及以上的客户，以及两个学术机构。该联盟就研究基础设施和研究主题达成了正式协议：（1）身体活动和健身；（2）营养和营养状况；（3）情绪和焦虑。随后，通过仔细审查和选择仪器来测量广泛的健康变量，开始为准备工作，以回答研究问题。这些仪器的具体要求是，它们可以在大量参与者的现场高效、准确地执行，并且这些测量对参与者及其护理人员的负担尽可能最小。然后，通过为客户、护理提供者的法定代表人和工作人员设计并执行全面的沟通计划，继续准备工作，这一计划具有自上而下的结构，特别关注亲自通知和激励关键利益相关者：专业护理人员。这一准备工作导致了 1050 名参与者（45.2%）的招募，并在评估的关键部分获得了较高的参与率。详细介绍了招募和组织以及选定的仪器。
